I have been struggling for over 12 years complaining about changes to my penis inflammation and pain when voiding and told it’s nothing to worry about and no concern for cancer. Welll lesions appeared in meatus and big tumour so had a partial penectomy 3 weeks ago and Sentinel nodes all gone for staging results on Monday 6th October for results if it has spread. Needles to say I am anxious about what is coming. I feel there is not enough support for penile cancer not enough information. I am a wreck and struggling emotionally
Hello Strattoddd746
I am Brian, one of the Community Champions here on the Online Community. I have just noticed your post has gone unanswered. I can't answer your question as I have a different cancer, however by me replying your post will be "bumped up" to the top of the group and I hope seen and replied to by other members of the Penile Community.
As it's the 6 October I hope you have had some good news with your staging results.
Here's a few ideas to look at to help with your emotions:
* Do you have a "Maggie's" near you - these are cancer Support centres where you can just drop in for emotional support - to find your nearest Maggie;s here's the link - "Maggie's".
* How about one of our "Buddies" - someone to chat to once a week - it doesn't have to be about cancer - link here - Macmillan-buddies.
* There's men's sheds - they can help with your emotions - link - Men's Sheds
I have a few more ideas if you want to come back to me - we are all in this together whatever cancer we have.
* There's our Support Line on 0808 808 00 00 (8am to 8pm 7 days a week) - go on give them a call they can help you too.
Best wishes - Brian.
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Strength, Courage, Faith, Hope, Defiance, VICTORY.
I am a Macmillan volunteer.
