Newly Diagnosed partial penectomy

Hello Strattoddd746 

I am Brian, one of the Community Champions here on the Online Community. I have just noticed your post has gone unanswered. I can't answer your question as I have a different cancer, however by me replying your post will be "bumped up" to the top of the group and I hope seen and replied to by other members of the Penile Community.

As it's the 6 October I hope you have had some good news with your staging results.

Here's a few ideas to look at to help with your emotions:

* Do you have a "Maggie's" near you - these are cancer Support centres where you can just drop in for emotional support - to find your nearest Maggie;s here's the link - "Maggie's".

* How about one of our "Buddies" - someone to chat to once a week - it doesn't have to be about cancer - link here - Macmillan-buddies.

* There's men's sheds - they can help with your emotions - link - Men's Sheds

I have a few more ideas if you want to come back to me - we are all in this together whatever cancer we have.

* There's our Support Line on 0808 808 00 00 (8am to 8pm 7 days a week) - go on give them a call they can help you too.

Best wishes - Brian.

You are right there is not enough support for penile cancer which I am trying to change in the North East, There is lots of information around and the hospital that I attended was very good you should have a dedicated nurse which you can contact anytime.

Hope the cancer has not spread to the senital nodes let me know your results.

Robert

Hi Strattoddd746, 

Sorry to hear about your situation and I agree, information and support is sparse. 

I am sure you will have a Clinical Nurse Specialist assigned to you, and mine was a diamond, really helpful, supportive and gave lots of good advice and information of resources. I am a reader rather than a talker, and find comfort in knowledge which helps me rationalise my feelings to then be able to talk to my wife and family who have been great support.

There are some great links below from Brian, I would add to that this one, a bit of a humorous approach from Jon on a blog he wrote whilst going through a similar situation, its called Knob Blog : https://www.knob.blog/ . I found this really interesting and informative prior to my operation and still go back to it now. 

This forum was really helpful, and full of information if you go back through the posts and follow peoples stories, but just wanted to say that it gets easier with time and as you make the adjustments mentally and physically, I think we all go through the stages of disbelief, shock, worry and relief at each part of the journey. There will be ups and downs. 

Get yourself well, and good luck on the results on the lymph nodes, they must be due around now?

Regards

J