I was diagnosed in December 2024.
I chose to try the alternative approach.
Eat clean detox and fast.
I initially had masses in lower intestines, left and right lymph nodes and of course the big dangerous one in the penis.
the last pet and ct scans have shown only activity in the penis tumor but it is major. The left and right lymph nodes didn’t light up and the lower intestines mass is completely gone. At least i hope, so in December they would have needed to cut and burn in all four areas. Up and coming potential surgery I hope only the one area but i need prayers. I have decided to go to City of Hope in Irvine California. I would need to call again since my last visit was so long ago.
Side note the doctors only gave me 6months to 3 years at best even with surgery. I did last 8-9 months without. But the tumor in penis is so big I cannot pee without catheter now and surgery is a must. May God be with me. I hope to survive and thrive in Jesus Name.
Hi Edouble
I’m Anne, one of the Community Champions here on the Online Community and, although I'm not a member of this group, I noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.
While you're waiting for replies, it would be great if you could put something about your diagnosis and proposed treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
I have only just joined this Forum, so only just seen this.
I was finally diagnosed with penile cancer in 2020. As this was during Covid I could only get telephone appointments with my GP who diagnosed an STD so was given antibiotics. They did nothing, so stronger ones were prescribed. They also did nothing so I was admitted to a local Hospital for a stronger IV antibiotic. The doctor who saw me there agreed with me that it was not an STD and consulted with St George's Hospital who agreed to see me. He advised me it was too far progressed and that I would need a complete penectomy, which meant a stay in St George's. I had the op on a Saturday, and was discharged on the following Wednesday. I was told I would have to stay in bed for 2 weeks, and would probably want to because of swelling in the area. He was right, I finally got out of bed after a little over 2wks, and have been fine ever since. Part of the operation was to reroute the urethra to between the scrotum and anus, which means I have to squat or sit to urinate. This became a bit of a 'downer' when I discovered the state of public toilet cubicles.
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