I was diagnosed in December 2024.
I chose to try the alternative approach.
Eat clean detox and fast.
I initially had masses in lower intestines, left and right lymph nodes and of course the big dangerous one in the penis.
the last pet and ct scans have shown only activity in the penis tumor but it is major. The left and right lymph nodes didn’t light up and the lower intestines mass is completely gone. At least i hope, so in December they would have needed to cut and burn in all four areas. Up and coming potential surgery I hope only the one area but i need prayers. I have decided to go to City of Hope in Irvine California. I would need to call again since my last visit was so long ago.
Side note the doctors only gave me 6months to 3 years at best even with surgery. I did last 8-9 months without. But the tumor in penis is so big I cannot pee without catheter now and surgery is a must. May God be with me. I hope to survive and thrive in Jesus Name.
Hi Edouble
I’m Anne, one of the Community Champions here on the Online Community and, although I'm not a member of this group, I noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.
While you're waiting for replies, it would be great if you could put something about your diagnosis and proposed treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
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