Hi folks - metastatic, no treatment options for pancreatic cancer

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Hello

I'm a newbie here, just wanted to say hi!

I'm a 49 yr old lad!

Had my diagnosis of pancreatic cancer (in the tail) and widespread mets in the liver, 5 days ago. Before that I had 2 weeks of developing pain, and before that, I had zero symptoms. 

So I have had very fast medical care, which has been so impressive.

However, the tumours are far enough advanced to be inoperable,  and untreatable, in so far as chemo would just not be worthwhile as it is so advanced and I am too weak.

Bizarrely therefore, I have been sent home for palliative care with no treatment possible in the entire hospital. Pain control is OK, up and down a bit.

I think I'm going in for a hard landing soon.

Despite this, we are making the most of each day, staying positive and we are praying and reading the Bible.

It's just to say hi really.

I've read so many accounts on here and my heart goes out to all of you.

X

  • Alba

    My heart goes out to you. I hope you are finding some solace and peace in your bible and the love and care you find around you from loved ones

    My brother is at the oncologist tomorrow. We will see if he can have some treatment to try and manage his metastatic pancreatic cancer.

    It's difficult to know what to say but I think actions speak louder than words. We Try and live life to the full on each day that we all have on this earth. 

    It may be a hard landing as you say but with love and support around you you will not be on your journey alone. 

    Look after yourself, be kind to yourself and make the most of everyday surrounded by the love of your friends and family

    X

  • Alba I'm sorry to hear of your prognosis. My friend 70 she came from hols with just a skin rash and she too was eventually diagnosed with PC She took the news best she could and she had no treatments.

    I must say that she did have 12 good months, even though initially Consultant suggested "six".

    She just was tired in her symptoms.  She did often loose her appetite and we all helped to encourage her with food -she was given the usual pancreas tablets which helped her digestion. She continued to go out daily, socialising and she took her strength a day at a time. I didn't hear her complain of being in any severe pain. Only tiredness. 

    1. I hope you can cope on your realisation with the findings and find the strength, to cope and I hope others here will respond to you. This site is good to write your fears or to ask for advice. Or even just to chat about anything. 
  • Thank you so much!

    Wow, it's amazing to be connecting with folk going through this. 

    Waking up each morning is just the best too - I'm still here!

    Thinking too far ahead seems to be destructive - after all, it's unknown.. one day at a time works well for me.