chemotherapy and mouth ulcers

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Hi everyone, I'm a 63 year old guy diagnosed with stage 3 pancreatic cancer in June this year.  Has anyone had experience of severe mouth ulcers during chemo along with total loss of taste and smell?  I am on all the recommended treatments from oncology but can't eat, no appetite either.  Does anyone have any suggestions which might help?  Can't take very cold things either due to the oxaliplatin in the chemo.  Thanks.

  • Hi  and a very warm welcome to the online community

    I'm sorry to read how you're struggling with appetite along with mouth ulcers and a loss of taste and smell. This must be really unpleasant for you to put it mildly.

    I don't have any suggestions unfortunately, having had a different type of cancer and treatment, but noticed that your post hadn't had any replies yet. Replying to you will 'bump' your post back to the top of the discussion list where it'll be more easily seen.

    While you're waiting for replies it would be great if you could pop something about your diagnosis and treatment into your profile as it really helps others when answering or looking for someone with a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username. 

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  • I've been rinsing with salt water, which has kept the ulsers at bay.

    Try chicken broth and mashed potatoes... anything bland you can get into you for energy.

    I can't handle cold with the oxilipltin either - such a pain and a challenge for me to hydrate. Hate warm water.

    Best of luck my friend,

    Lori

  • Hi Lori,

    Many thanks for your reply, i'll give that a shot, i hope it also gets better for you

    Best

    Charlie

  • hi.  I hope your mouth is feeling better now.  I had really bad problems with sore, dry eyes and very sore mouth with ulcers.  I discussed this with the nurse specialist and they threw the book at me prescribing a number of things.  

    First there was a mouth wash that i had to use as soon as i finished the chemo ( before the mouth ulcers and soreness started) caphasol. theses were tablets that you dissolved in a small amount of water and then gargled 4 times a day after meals.  If the soreness started, then there was gelclair - another mouthwash which coats the mucous membranes to protect them.  I also had biotene mouth wash and gel for the dry mouth and reduced saliva.  if things still progressed then we added in an antifungal - nystatin for any candida.   It sounds like a lot, but it really helped and made a world of difference!  for the dry eyes i had eye drops and eye gel for nighttime.  Hope this helps.  Talk to your oncology team!