Hello all, nice to meet you. I have stage 4 pancreatic cancer and am a Type 1 diabetic, and I’m nearing the end stages of my life. I’ve taken care of everything I need to and am currently just trying to enjoy the time I have left with the people I love. I have a great support system, but my partner is just not understanding what I’m going through. I was diagnosed nearly 4 years ago and she was there, and has been there, extensively through the journey. I know it’s probably denial, but I try every day to talk to her and be transparent and open with how I’m feeling and she just shuts me down every time. I want to include her in what’s going on, but I feel very discouraged hearing “I don’t want to talk about this right now” every single time. Between that and hearing things like “next christmas we’re gonna do this” or “we’re gonna plan a trip here in 2-3 years” just leaves me very bummed out considering I have, at best, 3-5 months of life left. Some days I get cranky with everything… but high blood sugar in the morning will do that to you, or anyone for that matter. Despite all of this, I’ve kept a very positive mental attitude and stay as active as I can. Every day I wake up is a blessing, and even the smallest things I do in a day are big wins for me. If anyone has any advice, I would love to hear any input. Thank you for reading. No matter what y'all are going through, we all got this together. Keep fighting the good fight! Much love.
Welcome to the our Online Community.
I’m Steve, one of the Community Champions here on the Online Community, my wife has Leiomyosarcoma so a very different diagnosis to you but as a carer myself thought it might be helpful to share a few pointers.
We do have some good information on talking about cancer and perhaps pointing your partner to that might help and they are also welcome to perhaps join our Family and friends forum or Carers only forum or even ring the helpline - they are really good and I have cried at them in the past.
I ended up doing a living with less stress course that really helped me, partially this was around learning that none of us really know what tomorrow will bring. A bit like when our son was due - we had an expected date but then he was breach so we had a date for a planned cesarean but then Janice's waters broke so we ended up with an emergency c-section and Michael ended up 5 days in the special care baby unit.
<<hugs>>
Steve
