Hi all,
Hope this is okay to post.
For the last 6-12 months I’ve been having multiple health issues. I’ve been to the GPs so many times and told it’s just anxiety. Eventually they realised its not all in my head and started scrambling to figure out why I’m so ill. I had two 2WW referrals for suspected lymphoma due to a lump on my neck and one for melanoma, both turned out to be nothing.
However, my relief has been short lived because in a bid to get to the bottom of this I’ve now been referred for an urgent CT scan of my abdomen and pelvis. I had lots of bloods which ruled out Pancreatitis/ infections/ ovarian cancer, and based on my symptoms now they’re talking about pancreatic cancer.
I’m so scared. I’m only 26 and well aware how dire that would be. I’m already underweight from the weight loss and growing weaker by the day. I’m worried if it is what is suspected I won’t even be well enough for treatment.
Everyone around me is burying their heads in the sand except for my MIL who has taken me to every appointment. My parents are still adamant it’s all in my head.
all I see everywhere is bleak stories about this prognosis and I’m terrified. I’m so young and had just started my PhD. When I thought it may have been melanoma or lymphoma I comforted myself knowing I may have time to go on a holiday and marry my boyfriend. Now I don’t know if I’ll see Christmas based on the things I have read on here.
Everyone is telling me how silly I am to jump the gun but I am so afraid. I’ve been telling GPs, A&E doctors etc for months how unwell I am and it’s all been blamed on my mental health without proper investigation.
I don’t know why I’m writing this but I really have nobody else to talk to.
can anyone offer any words of positivity or reassurance?
Hi Pt17srdg
People often worry about possibly getting a cancer referral but few talk about the impact of not being diagnosed but still being ill. My wife's diagnosis with Leiomyosarcoma ended up coming as something of a relief because at least then we knew what we were dealing with.
People often feel uncomfortable even mentioning the work cancer, there is quite a good book The Secret C by Julie Stokes that sometimes helps, you might even be able to get hold of a copy in your library. We certainly found quite a few people who would say "you look so well" - like they knew.
<<hugs>>
Steve
