Apologies for potential gibberish. Syill running on an hour of sleep a night after a month and not functioning my best
My husband was totally unexpectedly diagnosed with stage 4 cancer if pancreas tail after what was beleved to be a hernia complication. He had 2 metastasis in the liver, in both inguinal nodes and one abdo node.
He had insurance at was referred by the previous Dr.we found the whole consult and procces very strange and utterly unhelpful, I tend to deal with medical stuff for him just because I'm good at it and sort out it and he prefers me to do through the forms, answer his questing etc
The conaultant reiterated his diagnosis which we already had been told and told him he would be starting folforinox straight away. He said they're may be side effects, and gives us a list of potential ones which he may or may not get and says just tell us what happens
He told us a port needed fitting which was stressing first as he gave us written information and someone telephone to arrange it and talk it through.
How'ver, or big problem, at no point, despite asking when we( well my husband), was giveth no prognostic information at all. I know it's a guess based on statistics but it helps to get out minds in order even if it's wrong. Eg would would his life span be like possibly without chemo compared to with and how much would chemo le likely to affect the quality of his like. We also asked how big the tumours are and they refuse to tell us which is making the stress far far worse. I ended up having a total breakdown over in in the sotuation on a different day.
My question is it's out normal they are this obscure. I've only ever encountered cancer where prognosis is volunteered. We lnow my husbands time is short( I do realise in reading and soaking to macMillan,, my husband thinks it's years) knowing its important. We have a very young child and he needs and wants to know to know when is important to do things Together before time runs out.
Congratulations if you made any sense of this. I'm broken! What have been your experiences please. It's making it worse and far harder to crash with and cope. I'd like to hear d from others. Xx
I'm wondering what have been your experience of this. It's out pancreat8c cancer, private vs nhs, different doctors?
Hi TallOne and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
I'm not a member of this group but noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list.
I have twice been diagnosed with cancer and on neither occasion did the consultant say what my prognosis was or provide mw with any survival statistics. I think if I'd asked they would have given me a rough idea but, as lots of people don't want to know, they won't just tell you without asking.
If your husband wants more information about his prognosis then he could give his cancer nurse specialist (CNS), sometimes referred to as a keyworker or Macmillan nurse, a call.
While you're waiting for replies, it would be great if you could put something about your husband's diagnosis and treatment to date into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
"Never regret a day in your life, good days give you happiness, bad days give you experience"
