MY ANNE
Yesterday Anne had a visit from her community diatician. A charming lady who explained why perhaps Anne didn't need the amount of Creon she was taking. Anne suffers terribly from a bloated stomach along with pain from creon which has caused her not to want to eat. Her wise advice was for Anne to take creon only when she is eating high fat foods. In her experience Anne isn't taking anywhere near the amountof creon her other patients with terminal pancreatic cancer are having to take. And it was a shame her Creon intake hadn't been monitored after being discharged from hospital after refusing surgery and chemotherapy ( Please see my other threads stating why.) Anne followed the dieticians advice and ate well after the diatician had left and without creon or bad effects. A tin of chicken soup and two sliced of bread plus a small amount of chocolate.(She can have 4 squares of chocolate without creon but the lovely diatician said Why not eat the whole bar and get your money's worth out of the creon? LOL Bless her )
But the bottom line is today - Anne just doesnt want to eat! Even though she can eat 4 squares of her beloved milk chocolate without creon. She ate it after the diatician had left and without any bloating or pain yet today its not in favour. I asked the Palliative nurse who arrived just after the diatician whether Anne might be suffering from cachexia? A weight loss caused by the cancer and causes weight loss despite how much a cancer sufferer might eat - although they almost never want to? The palliative nurse said No. But now I'm wondering if these wonderful people were just being kind and positive to give Anne a lift. Anne is a strong minded woman who has never given up in her life. But today she wanted to use a recently acquired wheelchair to take her to our local GP for a blood test. I joked and said my Queen Anne has finally found her throne which made her laugh. Anne can hardly climb the stairs to bed and I have to give her a hand when she gets to the top. I joke my Queen Anne now has her butler to escort her to bed. She laughs, gives me kiss and we both say we love each other. I know I'm losing her and will phone the Palliative nurse for an off the record conversation about how longer my darling has to live. I'm hoping she will level with me as a retired police officer. It worked when I was called before retirement and on duty by our local hospital to see my Dad. The doctor after trying to put my mind at ease final finally said when I asked "Please give me the bottom line." and said he has about two hours. I saw my Dad take his last breath. BLESS him.
Hello Geoff
What a beautiful piece of writing and how wonderful for Anne to have such a lovely husband. Anne is a lovely lady too.
From my experience this is the progression of PC. Anne will be tiring of the struggle to eat. That’s the way my husband was. Anne’s not giving up but I suspect her body is changing.
I don’t know if the palliative nurse will be able to give a timescale but you know what’s happening and you and Anne are doing so well in your acceptance.
Thinking of you both.
Squeaky
Hi Sqeaky
Thanks so much for your very kind reply. I value your advice Sqeaky because I know you've been through these tragic circumstances alongside your dear husband. It's pretty much a day to day situation, living for the moment. I'm not sure if my kids should be informed of their mum's gradual decline. I don't want to inflict unecessary worry on them at a time when they could do nothing to help. My son is 48 and daughter 46. Any guidance would be appreciated.
Geoff
At the end of all our journeying will be to find ourselves back where we started knowing the place for the first time. TS ELIOT.
Oh Geoff I’m so sorry. You’re love for Anne shines through your post. I found that both my mums Macmillan nurse and GP were very straight and honest with us. 2 days before my mum had her stroke her GP told her she probably had about 2 weeks left. It was hard to hear but it was important to my mum to have as much control as she could. She died a week later.
It sounds like you are handling this in a beautiful way with a little humour and a great deal of love.
Thinking of you both x
Hi Geoff
I don’t have children so don’t know the best thing to do. But on balance I’d probably tell them. They can’t change the outcome but they can support you.
Squeaky
Hi Squeaky
Thanks again for your guidance. I tend to agree with you. I'll find a way of gently raising the subject. I noticed in my last post to you I misspelled your name. Squeaky without the 'u' Silly old man needs to pay closer attention. LOL.
Geoff
At the end of all our journeying will be to find ourselves back where we started knowing the place for the first time. TS ELIOT.
Hi Squeaky
I took your advice and phoned both my children and levelled with them about their Mums current situation. They both said thank goodness I told them. I should have informed them earlier. Both are to visit Anne Monday and Tuesday. My goodness that has taken a great weight off my mind. MANY THANKS AGAIN Squeaky x
Geoff
At the end of all our journeying will be to find ourselves back where we started knowing the place for the first time. TS ELIOT.
Hi Geoff
im glad your children reacted so well to the sad news of Anne’s situation. I recall that I felt I had to keep the burden of care to myself when I should have sought help from others. I hope the day goes well today and Anne gets some rest.
Squeaky
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