I had my whipple surgery 4 years ago. Different forms of sickness turns up often. I recently have frequent terrible abdominal cramps when I sleep. My GI explains this is the adhesions (internal scar tissue) resulted from the surgery. May I know any of you experience the same problem? How do you overcome it?
My whipple procedure was in response to an islet cell tumor when I was 38 in 2004, with AWESOME Dr. Pitt at IUPUI Medical Center in Indianapolis. I went on to be pregnant with twins the next year, who were 7 weeks premature but are now beautiful, tall, healthy, redheaded young women. I, too, have intermittent abdominal cramping that basically hits me every 1-2 months, brought on largely by stress. I imagine strands of scar tissue blocking the normal movement in the small intestine; this is supported by the fact that if I just lie down, massage my belly or apply heat to relax the muscles, and keep massaging, I can feel and hear the food move, and the pain passes. I feel "echos of this for another day or two, but then it goes away. I have had two incidents that are worth noting: once, after eating seafood in China, I had horrible cramping with diarrhea with orange oil in it -- not a good sign. I avoid shellfish and haven't had that issue since. Secondly, I did develop a bleeding ulcer from the stress of making the set for a school play, so now I try to limit my stress as well. I take no extra supplements (although I probably will soon, more for menopause than for my pancreas), and I take Miralax daily in my coffee. I limit, but don't completely avoid, fried or fatty foods, but they don't bother me if I keep my gut moving. I consider myself extremely lucky. Good luck to all of you as well.
I had my whipple surgery followed by chemo about 2.5 years ago (Male, 59yrs at surgery). I lost about 20kg during these interventions and I am not able to gain any weight so far (I look quite emaciated). About 6months after surgery, I developed severe heart palpitation especially in the mornings. A battery of tests were conducted and my heart was ok and no medicine was prescribed. Then I had to research myself and started supplements containing Magnesium and B1. This worked like a magic and I no longer got the issue.
I never faced any pain after the procedure. the only aftereffect I face now is tiredness in the mornings..say once a week.
Initially, I had a problem of infrequent diarrhea. But for last one year, my stomach is well settled. The only food item I avoid is sandwiches that contain butter. I eat everything in small quantity and mostly vegetables and fruits. I take one Creon1000 tablet a day with lunch. I walk for about 8kms everyday and I feel it is important to keep our body mobile. It is important to be patient and give our body a chance to heal itself.
Wish you all the best.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2024 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007