Late night ramblings

Morning all

Really interesting posts and it’s good to see happiness in the group.

Splodge, just picking up on a point you made here and on another thread. Sometimes, happiness and contentment comes from looking forward to something like the holiday your Mum planned. That’s really got me thinking!

The deer are still around. Yesterday, there was a Mum and two babies. She saw me watching and deliberately, I’m sure, turned round to chew the plant in front of me.

off to do the ironing!

Squeaky

Morning everyone 

Squeaky those deer must be driving you crazy. They’re beautiful creatures and very intelligent but it’s almost like they are deliberately taunting you eating your garden. Hard to be cross with them though. 

I think having something to look forward to gives you hope and we all need that. As I’ve said my mum had no fear of death she treated it like her last big adventure. But she was in no rush to give up on life as she loved it and lived it to the fullest. With the holiday I think really it was about hoping for more time. When her Gp told her she was in her last couple of weeks her reply was “bugger, I hoped for more time “. 

Have a great day all xx

Hello Kate,

well that sounds like my kind of holiday. Sometimes it is just what you need. I’m thinking about a little break too, possibly Dorset, but not sure yet.

i don’t know if I’ll get to meet this lady with psncreatic secondaries  because I’d suppose my gp wouldn’t be allowed to introduce us or pass on phone numbers. But in the circumstances it would be very helpful and I can guess how she might be feeling. If she has chemo I expect to bump into her at some point in hospital. 

I didn’t go for my pancreatic//abdominal scan yesterday because I realised that with it being on Saturday, I couldn’t be treated via the portacath (and the chemo unit was closed). Nobody in radiology is trained to use the portacath.,I have said I want my appointments on weekdays now. My veins have been giving problems, using a needle or catheter causes them to bleed profusely so need to avoid this.My arms are a mess, covered in blood blisters and even falling over in hospital last week caused another bleed. 

I should say (discreetly) that I have tried out the medication that dare not speak its name (yesterday)  and didn’t like it. I’m sure my brother meant well but it’s just not for me. I was not very well anyway and felt very whoozy and disoriented and, in the middle of a conversation with my neighbour, suddenly forgot what I was saying and then started speaking gibberish! I’d have to recommend my chums on here give this a miss but then  I’m a wimp!

4 am? Is that really the time?

Pepys xx

Hi Pepys

So you've tried the unmentionable and it's not for you? Interesting, because of all the reports from people who have taken it that I know of, (4 or5 lol), you're the first to say that. I don't think you are a wimp, no way Pedro. You can give as good as you can get and I think I called you a tough old bird once lol.

Hope you had a good sleep and you're well rested. I've sent a pm to Viv so hopefully II''l hear back soon.

Tvman xx

Hi all 

so Peyps your parcel arrived! What a shame it wasn’t for you. Same with my mum I think she took too much but you’ve given it a go. 

I’m having a crazy day today trying to get organised for my holiday. Silly really I’m paying ridiculous money for a relief manager and trying to do everything myself. It shall all be worth it once I’m away as where I’m going has no WiFi or phone signal so I will be able to completely forget work. 

Stay well everyone x

Hello all. Currently in pre-op waiting to have my chemo cataract done. I’ve had some drops in my eye to dilate the pupil ready for surgery. My eyes look like David Bowie’s - how funny seeing we were talking about him recently!

Sorry the unmentionable didn’t hit the spot, Pepys. As always, different strokes for different folks.

Have a great holiday, Splodge. And although theyveat your plants, Squeaky, the deer sound lovely.

PS: Just out of theatre. Was weird being in one awake! All gone 100% - surgeon very happy.

Evening everyone 

hope the recovery is quick kiwiwolf, I’m not squeamish in the slightest but have a terrible fear of people going anywhere near my eyes. I even have on my donor registration they can have anything except my corneas. I know it’s ridiculous but even if I’m dead I don’t want anyone touching them. Years ago I took my granny for her corneas doing and I couldn’t even stay in the room whilst they examined her. Blood,guts, vomit no problem just not eyes. 

When I was 10 I had a fabulous cat full of character that had 1 gold eye and one green. He was white with a ginger head and tail of course there was only one name possible, Ziggy Stardust. He was the best cat I ever had and lived to be 19. He stayed with my parents long after I left but whenever I visited there was no doubt I was his slave. He’s buried at my sisters house and ridiculously I still go and chat when I visit. Thanks for the memory. 

Now that really was a ramble. 

Night all

Dear Nikki 

Are you home now? So hope you’re feeling relaxed and comfortable. Poor you, bloody cataract.. yes I prefer operations awake too. Or semi-awake.

the unmentionable is very odd. I suppose it may have very good effects, which is of course the point of using it but I don’t like the feeling of being out of control. I’m guessing I took too much!! 

So you look like Bowie now? Many people would give good money for that...

pepys xx

Good morning

It is always good to come on here and find out what’s happening. I’m glad all went well, KiwiWolf.

Splodge, have a good holiday.

Ive not seen the deer for a couple of days but the seabirds on the Forth are noisy this morning.

Very minor in the game of life but I’ve got a sore knee which has been troubling me so off for an X-ray tomorrow.

Squeaky

Dear Kate,

Is it today that you go on holiday? Well, Bon voyage, you deserve a wonderful break. 

I’m so slow today! It’s too hot to go out so I’m pottering indoors and preparing to go on my exercise bike. There has been a little improvement in my legs actually, which must be down to the bike.

My consultant decided to cancel my chemo today and to take at least a 2-week break in view of the neuropathy. I expect it’s a wise decision. 

Not sure whether I mentioned this but yesterday when  I was having my blood test, my consultant got me a slot for an abdominal scan. I’d refused to have one the day before because the radiology staff aren’t trained to use portacaths.,so the chemo staff prepped me and I went for the scan. I want everything done from Monday to Friday now.

My friend/travel companion was here for the weekend (to sort out missing roof tiles). He announced he was off to the supermarket on Sunday and, in spite of my protests, returned with piles of food and wine. I have s modest appetite and keep trying to explain this to everybody! I have divided all the fabulous cheeses and given half to my son and DIL (as well as several boxes of crackers). Oh heck, it’s not too bad a problem to have and the wine, gin and chocolate will keep! 

Ok, time to honour my promise to use the bike! 

Pepys xx