Dad - pancreatic cancer diagnosed aged 64, no symptoms

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Hi all.

My dad has just been diagnosed and has been given a sR1 form.

we have a meeting on Thursday this week.

we know it’s terminal.

He is only 64 and has little to no symptoms it was found from a ct scan when he had a water infection 2 weeks ago.

What want to know is and I know the numbers are really bad.

But his tumour markers on the sR1 form are 

CA19-9 16,040 has anyone had numbers like this.

I just want to prep myself as much as possible before Thursday for the meeting.

Any info good or bad.

  • I am sorry to read your news , I am 72 and my diagnosis was prompted by jaundice. I am part way through chemo. I don’t recognise the figures I wasn’t given nor did I ask for any figures,

    The statistics are difficult a recent Lancet gave a medium life expectancy of 4 months, a press release in the Guardian today  gave 3months. To put it simply half of us will die within 3 to 4 months of diagnosis. 

    But your Dad may, by good fortune have found the tumour early and surgery is possible. Most of us present when the cancer is “doing something which we notice” and then likely non operable. 

    I understand being fit ,not having other health issues and exercise help us face chemo and may give us a few more months, sadly not years.  And that’s what I am going for.

    I hope all goes well and if it does tell us, we need good news.

  • Thank you for your kind response.
    We have found out on Wednesday last week.

    Thats it’s in his gallbladder and also has gone in to his stomach lining.

    i also think there is more but they don’t want to tell us until Thursday in the mdt meeting.

    i just want to make sure I'm strong as i will have my mom with me and also my dad.

    So i am just trying to get as much information as I can.

    Thank you.

  • Hi ,

    I'm so sorry to hear that, it must have been a most incredible shock. How are you and the family getting on now? How did the MDT meeting go on Thursday?

    I know you say you want to be strong for your family, and that's absolutely understandable, but I just want to make sure you know that you don't have to be 'strong' here. You can express what you're feeling, no matter what it is. 

    Many thanks to  for sharing with . I'm sorry to read about your own shock diagnosis. I'm very glad to see you both supporting one another.

    Don't forget that if you ever need to talk to someone who's just there to listen, you can always talk to our Information and Support team advisors. They’re available from 8am to 8pm, 7 days a week, on freephone 0808 808 00 00. You can also reach them by email, or via live webchat.

    All the best,
    Matthew
    Macmillan Online Community Team

  • Update 

    Hi thank you for your reply.

    meeting went well the doctors was very good at explaining it all and took there time.

    they have now said his primary cancer is bile duct.

    its in the gallbladder pancreas and stomach lining.

    i asked if it was just in the stomach and he did say no it’s now not contained in just that area.

    Im not to sure what he did mean by that tho

    As he didn’t say any other organs it’s in.

    He had been offered palliative chemo.

    And I think he will give that ago but he had a few things planned and doesn’t want to start for another 4 weeks.

    we was told it’s a very aggressive cancer and it’s spreads fast.

    If he will end up having the chemo I’m not to sure.?

    Thank you