My husband was diagnosed with PC last august 2025 and long story short was eligible for Whipple surgery but needed 6 cycles of folfirinox before but needed to have 12 because ca19/9 levels even though where reducing but still very high 4000! We where having the surgery st an alternative hospital due to the veins involved where the tumour was . In between this the hospital where the surgery was being done requested an MRI after 9 th cycle , we arrived at our local hospital for results and honestly up until the week before we where told it hasn’t spread and tumour is stable , so we where excited in the fact that surgery was in the distance.
arrived at oncology to be greeted with a new oncologist you just sat and delivered the terrible news of “ you wont be having surgery it is on liver and stage 4 palliative” ! No compassion no support with the stern young nurse absolutely nothing!
I spoke to our CNS who was away at this appointment, and requested a referral to the hospital where the surgery was going to take place to see their oncologists and see what treatments can be offered because we feel that we just been left high and dry ! I have researched and researched everything that could be offered but it is so hard to get the correct one. I feel the statistics of PC are so low but are they really giving us the best possible treatments or is it “one size fits all” and you are pallative thats it!!
I will PUSH and PUSH for anything that could help my husband live longer and wont leave any stone unturned!
if anyone is in same situation please give me some positive news .. or advise… I getting frightened
