Hello, new here.. already found some incredibly reassuring comments and posts so thank you.
loved one recently diagnosed last week with pancreatic cancer spread to the liver, has been declined chemo / transplant , but hasn’t been seen by an oncologist yet - is this normal?
my loved ones partner is struggling far more, and also been told there’s little in support for carers - don’t need financial support but emotional support as they are not sleeping eating and cannot get timeline of 3 months out of their head.
positive to read so many beating their prognosis as think this is so disabling as only symptoms were urinating lots and chest pain which has been eased by blood thinners.
doesn’t quite feel real, nor do we want it to be but wish to make the most of any time left and would love to think they have longer than told by the doc.
my questions are - carer support available - beating the prognosis - when to expect to see a specialist? Any other tips to help with symptoms as all teeatment has been refused :(
Hi Charlottermn and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
I'm sorry to read that your loved one has been diagnosed with pancreatic cancer which has spread to their liver.
As I'm not a member of this forum I can't help with your questions, but I noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.While you're waiting for replies, it would be great if you could put something about your loved one's diagnosis and proposed treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
"Never regret a day in your life, good days give you happiness, bad days give you experience"
