EUROPAC trial – FAMMM syndrome

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Hi – am wondering if anyone with FAMMM syndrome has taken part in the EUROPAC trial?

I was eligible to join this, but chickened out because I couldn't face the EUS.

My GP had suggested EUS for other symptoms.

I'm thinking if I have to have an EUS then I should do EUROPAC? Any thoughts from someone who has experience of the EUROPAC trial?

  • Hi  

    I noticed that your post hadn't had any replies yet so I searched the group to see if there were any previous posts which mentioned EUROPAC but drew a blank.

    Hopefully if there is anyone in the group who is on or has been on the trial but just not posted about it sees this post now it's 'bumped' back to the top of the discussion list, they'll pop on to share their experience with you.

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     "Never regret a day in your life, good days give you happiness, bad days give you experience"

  • Thank you, that's really kind. x