Things were going well then BANG

Former Member over 3 years ago

15 replies
27 subscribers
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I was told I had I was lucky 9 months ago as after having my throat cancer cured they did a scan and found that I had early onset pancreatic cancer apparently that was classed as lucky as this horrible disease isn’t normally found till it’s too late.

I had 12 rounds of folfirinox and all the scans were indicating that it was reducing the tumour so they said I would be able to have the whipple operation.

then I had 15 rounds of radiotherapy with oral chemo tablets.

I then had a scan and this is where the BANG happened I saw the surgeon last Friday a week after my scan and he said that between stopping the chemo and having the radiotherapy the tumour has spread on to the SMV vein and he is not able to perform the whipple so I would just be referred back to my oncologist and I would hear from him in the next 2 to 3 weeks.

I asked for a prognosis and he said I have a maximum of 12 to 18 months if I’m lucky.

I just feel like as they can’t do the surgery I have been hung out to die I haven’t been able to sleep I don’t feel like eating and every time I look at my beautiful wife I just break down I feel so hopeless and just don’t know what to do.

im sorry for the story of self pity but it just isn’t easy to talk to anyone in my family about this and how I feel.

Chrisid over 3 years ago in reply to MeadowL

Hi Meadowl, can I ask if you have heard of whipple being done if around the SMA. It’s seems once it’s around that vein they give up,

Can I ask if the was in the neck if your pancreas?

thanks

Chrissie

MeadowL over 3 years ago in reply to Chrisid

Hi Chrissie, my tumor was at the head of the pancreas, no vein involvement. Dr Christopher Wolfgang and a few other docs I've heard about on Whipple Warriors are often willing to operate in those cases as well as on stage IV which I was. I hope this helps!

Violet2022 over 3 years ago

Hiya. I am in the same boat as you with this. I was diagnosed may 2022 and had 11 rounds of chemo with really good response. My tumour shrank alot and some of it has calcified (died). Was due to have an Appleby procedure, had another scan and it's now spread round the vein and there is nothing they can do. I'm waiting to have chemo. I am also very scared and keep crying. I'm 52 have 3 kids and a 2 year old granddaughter. Life is so unfair. Sending you love and hugs x

Lynda Lou over 3 years ago

I’m so sorry to hear this Maccaman. My heart goes out to you, it must be a huge shock to you and your family. . I’m in the situation you were a couple of weeks ago, 11 rounds of Folfirinox and now I’m on to 15 rounds of chemo/radiotherapy. The time between my last chemo and first radiotherapy was a month and I also worry the tumour has grown. I’m sending you big hugs x

Pinky over 3 years ago in reply to Violet2022

I’m so very sorry to read this Violet 2022 and I just want to send you a hug & wish you well with your treatment. Keep taking the creon tablets (digestive enzymes) to keep you strong and maintain your weight. God bless x

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