Introduction. Mucinous Ovarian Cancer

Hello Bec0891

I am so very sorry to hear about your diagnosis.  What a terrible shock it is to be told that what is wrong with us is in fact cancer.  it sounds as though you are being particularly brave and keeping going.  Having a young daughter must make this particularly devastating for you.  I had a diagnosis of mucinous ovarian cancer three years ago and I joined a group on Facebook for women with this diagnosis. One of the things I often hear people talk about is genetic profiling of their  tumour in order to identify alternative treatments. To keep options open. There are new treatments coming out all of the time and this genetic profiling does seem to be quite an important factor.    I think it is certainly worth asking your oncologist and going to the McMillan advice line and asking them also   They have an online forum, but they also have a helpline   I found them to be extremely useful when I was having my treatment. 

I know it is literally the thing that people with cancer hear all of the time but it is still wise advice.  To take each day as it is presented to you and decide how that day will be used by you and your daughter.  Please never forget to attend to your own needs and look after yourself and make a fuss of yourself.  That is so important.   Especially being a mum, I think it is a case of trying to keep going doing things as normal.  Whilst that is so important, equally important are your needs.  

I hope you have a good support network in place.   But it never does any harm to make sure that you’re reaching out in all directions.  

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Bec0891

So sorry to hear of your diagnosis, must have been such a shock  especially after you've already been thro the surgery.  My history -  stage 4 with ascites and pleural effusion, can be looked up on Patchworks profile.  I finished the same 6 cycles of chemo and refused the operation after the 5th due to my age and arthritis, Now my markers have dropped from over 2000 to 27.  I'm  feeling well now, & started on Bevacizumab (avastin) infusions on the same timescale as the chemo but with hopefully less side effects and are less time consuming.  (Only had one so far, and so far so good).  I could have had tablets (PARP inhibitors} as an alternative suppression therapy, I may go on to those if the avastin stops working or I get a bad side effect.  I was told you need to think of your cancer as a chronic condition  and remember that new treatments are coming out all the time, so whilst incurable it is treatable and will extend your life.   As Pickles 1959 says if you haven't had the tests for the BRACA gene, definitely ask your consultant.  If it is positive they can test your daughter too.   Having a young child when you have stage 4 cancer must be extremely tough but stay positive, make time to make the most of every day and spend quality time together, I find I appreciate the little things in life more, like a lovely sunset and beautiful view,  it costs nothing but we often take so much for granted.   Good luck with the chemo and love and prayers to you.  Patchwork.