Hi

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Hi, I’m Claire. Nearly 45 years of age, suffered with heavy periods for years which have become painful, followed by bleeding after intercourse and I passed a clot in December. I pushed for a gynae visit through Bupa, which I went to a week and a half ago. He spotted a growth and a wound on my cervix. MRI has picked up “adenoma malignant” measuring just under 5cm. Also a cysts on my ovary. Next step is a CT scan and transfer to the oncology/gynae team. Putting a brave face on but the shock of it is something else. I found out yesterday morning. I honestly thought I was going for an appt where he would say here is some HRT and send me on my way. 

  • Although not the result you yourself or anyine wants to hear ....good job they found it !

          Your consultant and clinical nurses and all the staff concerned are the beat people to listen believe you me  !

             Don't focus on negative  horror stories !

         

           

              

  • Hi  Claire, and welcome to the community.

    The initial shock of a diagnosis is quite a blow, isn’t it? Especially when it’s not at all expected. I was the same when I got my cervical cancer diagnosis-completely blindsided.

    It takes time for your mind to process things at the start, but hopefully you’ll not have to wait too long for your scan and more information. I felt much more reassured when I had my scans and my gynaecologist told me the plan moving forward. 

    I hope you’ll find this a supportive environment where you can chat with others going through similar experiences, and I’d like to let you know that we also have nurses who can help with questions on cancer and treatment available here

    Ask A Nurse

    While the nurses are separate from the nhs and cannot give you specific information about your situation, they can give general advice and reliable information. In addition to this, we have a support line which you are very welcome to call. You’ll find friendly and helpful advisors who are happy to listen and point you to sources of support-I’ve called them myself, and they are very kind. The number is in my signature.

    Meanwhile, I understand how difficult it is to be in the limbo of waiting for information so please use the group and the community to help support you through.

    Sarah xx


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  •  The reason i say that is i feel alot of people dont ask their medical team enough and practically ask everyone else but their medical team ...

        I got told the other day to keep asking them  its extremely healthy and youre not going away asking everyone other than them which I feel a great deal of people are doing!

          I had a list with around 4000 questions on it and they had time and care to answer each to satisfaction .and I asked alot about things id heard and they spoke with great clarity regarding them .

           I feel that is the best attitude to take because I feel alot of people are at odds with their consultants and telling these absolutely horrific stories and they ask everyone else but the people who are the right people to ask .

           As soon as you get a query ASK THEM !

            Our friend went to endocrine the other day with a list. 

         Hes a GP ! 

          ha!

             

  • Hi Claire, I share your sense of shock at being diagnosed at a 'young' age, although I am 10 years older than you.

    After my symptoms of bloatedness, tummy discomfort, feeling scrunched etc I was told it could be gallstones and had abdomen and pelvic CT scans. When 2 people came back to see me about an hour after the scans I immediately thought this doesn't look good and that's when the bombshell C word was spoken. The only positive aspect is that I seem to have been started on treatment pretty quickly, so the battle against it has actually started. The flip side of me however asks does that reflect how advanced it is...

    So the last month has been a complete whirlwind and upheaval of everything - thoughts on own mortality, regular life routine upended, on sick leave from work, impact on partner, eating/tummy issues, loads of hospital appts with treatments/medicines I have never previously heard of, financial/salary/pension arrangements in chaos, are my dogs going to outlive me....

    Yes that is the big picture but as I have posted on other discussion threads on this forum platform, I can only describe my own experiences but I do think it is possible and necessary to find some lighter moments, even humour sometimes, to offset the wider picture maybe a bit.

    I am experiencing an increased level of 'mindfulness' e.g.  watching 11 little ducklings at a local river with their proud parents paddling in the swirls and eddies, going to a local landmark with my partner in the early evening sunshine and watching paragliders in the air. My partner doesn't quite 'get' this yet and to be honest I myself am surprised at this new found ability to stop and savour the smallest of things (maybe that is simply because back in my normal life things were much busier with work etc so less time to reflect).

    Anyway, I just wanted to offer support and virtual hugs to you after reading your post 

    Best wishes x