RE: Incurable ovarian cancer

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Hello,  I was first diagnosed with breast cancer in 2010, followed by  ovarian cancer in 2022. I had chemotherapy treatment after each diagnosis and opted for major debulking surgery in May 2023. Everything was going so well until August when I was told I had reoccurrence in my lymph nodes. My oncologist talked about quality and long term chemotherapy to try and stabilise the disease and give some longevity of life.  I have a beautiful loving family and too much to be here for. So yesterday I started chemotherapy treatment again for a 3rd time. Feeling very grateful that I'm feeling ok although I know it's early days. I don't want to think too far ahead but I know in my heart this is the right decision for me. Yes, im scared for what lies ahead but none of really know what each day will bring 

  • Hi Lil60

    I am sorry to hear that you have had a recurrence in your lymph nodes.

    I hope that the chemo will go well for you and that any side effects are manageable. My chemo was carboplatin and paclitaxel and although tough going at times- It did feel manageable. Having your family around you will undoubtedly help. 

    I remember feeling scared before my chemo and it is natural to be worried about what is ahead but as you say no one really knows what each day will bring. We do have the Support Line available from 8am-8pm is at any point you feel like talking things through would help. I know for me sometimes I found it helpful to talk to people who weren't directly involved. 

    If there is anything else you need, please do ask. 

    Jane

           

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

  • Hi Lil60 I have also been given the news "incurable" ovarian/peritoneal cancer.  This is my 2nd occurrence and now have to have 6 rounds of carboplatin & Caelyx.  Also had debulking surgery in 2019 and chemo (carbo & Taxol).  Then in may 2024 it came back again and had 6 rounds of chemo (Carbo & Taxol) then had another op to remove the tumour. Had to take Rucaparib and Niraparib but I just couldn't tolerate it.  So this year noticed the CA125 rising significantly, had CT scan and they found multiple lesions on the peritoneal wall, and been told it's incurable.  I understand how you feel and it's the only thing we can do to live longer with our wonderful families. It's scary but we can do it. Slight smile