Recently diagnosed Ovarian/peritoneal cancer

  • 3 replies
  • 61 subscribers
  • 477 views

Hi, I’ve just been diagnosed and I am so scared. Was just feeling a little unwell for the last few weeks and finally got a scan. Ovarian cancer that has mastastonised into massive peritoneal deposits. Have had biopsies done and fluid drained out of my stomach but don’t know what stage, prognosis or treatment is yet. Will find out on Thursday. 
I am feeling so overwhelmed and petrified that I’m going to be told there’s no hope! I started goggling bad mistake and have every possible symptom going to suggest I’m at the end of my life. Any advice or other’s experiences with this and how you cope would be helpfu. Thank you 

  • Good Morning Wenders

    Welcome to the Online Community.

    I am sorry to see that you have had a diagnosis of ovarian cancer with deposits on your peritoneum. Having tests and being in diagnosed is such a worrying and stressful time where you have lots of questions that need answers to and are still waiting to find out what will happen next. 

    I understand the feeling overwhelmed and petrified feelings. I felt similar. There is no right or wrong way to feel and I just tried to go with the flow and acknowledge that all these feelings are valid and normal. 

    I would advise against using google. I did myself and frightened myself silly. The thing is they don't have all the facts about your health and diagnosis and don't know what stage you are at or what treatment etc is best for you. A lot of the information on the internet is out of date, not accurate or not specific enough to you. I recommend that you stick to Macmillan as all the information they have is reviewed regularly so you know it is the most up to date. I will pop a link below which you may want to have a look at. It gives a bit of information about the type of cancer you have been diagnosed with and what might happen next. It may also help with your appointment on Thurs as it will give you an opportunity to think about questions you may want to ask.

    Ovarian cancer | Macmillan Cancer Support

    Cancer of the ovary, fallopian tube, or peritoneum booklet | Macmillan Cancer Support

    I hope that this helps a bit, but any more questions please do not be afraid to ask. If you feel that chatting to someone may help there is a phone number below for the Support line and they are really helpful on there.

    Please let us know how you get on on Thursday and I hope that when you have a firm diagnosis and know the plan ahead for treatments that it will feel a bit better. Whatever treatment is offered, we will be here to offer support.

    Jane

           

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

  • Hi

    I was diagnosed last February with OC stage 4b. I’ve had chemo and surgery last year and been on  maintenance drugs since last September. This is the scariest thing to get told but actually  for me I wasn’t too bad in the very beginning but I think I just couldn’t quite believe it had happened to me and even when I told people it felt like I was talking about someone else. I wanted to say, once it sunk in, that I was terrified of the chemo and especially the surgery and although neither a walk in the park the reality wasn’t anywhere near as bad as I imagined. You will have days when you felt devastated by it all and days when you feel a lot more positive, it is a roller coaster of emotions. I tend to take myself off to the beach at my lowest times so always try to do the things that  make you feel better and always do nice things as often as you can when you feel able. Just reading some of the posts on here shows how wide and varied everyone’s cancer and symptoms are. I think I just thought there are all these women getting thu this so there’s no reason why I won’t and that goes for you too. We are a resilient bunch despite feeling like quivering wrecks some days. Sending lots of positive vibes your way x