New here, very rare - clear cell caught at stage 1

Hi Emmilou

if I can help with any further questions let me know. I am much further on the journey and have acquired quite a lot of information so far. Yo

it sounds like you are at the start of your journey. Keep brave and positive.

lots of hugs

️ 

Dahlia 2270

Hi, I had clear cell stage 1a diagnosed in January 2020. I had my hysterectomy but didn’t need chemo as it wasn’t thought it wouldnt  be beneficial. Ive never been able to get my head around it. I was told I was lucky, but lucky to me is never having it diagnosed at all. I feel bad for feeling this way when I know other women have much harder times with it. I just wanted to let you know you aren’t alone x

Hello Dahlia 

I've just seen this thread and hope you dont mind ne responding to you as it seems you have been on a bit of a journey so will understand my fears.

15 Dec I was diagnosed with clear cell stage 4 ovarian cancer, spread to lung, abdomen and lymph nodes. I only had one symptom, needing to pee more often. 

I have started chemo (had 2 rounds) carboplatin and paclitaxel plus avastin. Side effects are rough. Ive been advised I will have surgery after 3 rounds of chemo providing its working & shrinking my 6" tumour. I haven't asked about prognosis as yet and dont want to know really as I'm trying to take each day as it comes and not think too far ahead. But Im worried what this all means for me and what 'if' so to speak. 

Would like to hear from anyone else diagnosed at stage 4 and in a similar position

• Thank you  

Hi

i was diagnosed with Stage1A clear cell ovarian cancer. I was fast tracked and had a fell debunk and removal o Ovarian tumour on 2Feb 2020.  Also was on carboplatin and Paxitaxol chemo as a mop up. A year later a CtScan showed cells developing at the top of my omentum. Another 6 months of chem followed Carboplatin and lipisomal doxorubicin. Shortly after this I chose to go onto a maintenance drug. Niraparib to control the cancer. So far this seems to be working. I have a 3 monthly scan to monitor and monthly meetings with an oncologist.

I hope this helps. I found that hypnotherapy helped with the fears and anxieties we all feel about the cancer returning. At present I am fit and active and enjoy life. I have joined a womens cancer group at the Rosewood centre wher I have found a lot of support and information.

take car

Dahlia2270

Hi emmalou

I too  was stage one I had two cancers endometrial  and ovarian complete hysterectomy followed by carboplatin,and  really just sailed through with no side effects except for thinking I was a fraud because I was so well,