No chemo

Hi Kallca

have you had a CT Scan or had your bloods fully checked especially the CA125?
what sort of problems have you had since seeing the oncologist?
Have you thought about obtaining a second opinion from another oncologist? You can request this via GP or the hospital you were diagnosed at.

Hope this helps and good luck

I was diagnosed with Stage 1A clear cell ovarian cancer

Dahlia 2270

I only saw an oncologist once. I ended up in agonising pain and went to hospital 3 times, they told me i had IBS but I ended up in emergency surgery and lost 2 sections of bowel as a hernia from hysterectomy had been strabgulating bowel. Since then ive had numerous hospital admissions from again the agonising pain. They have told me its adhesions, but I don’t understand how its the same pain as before? I feel like there us an irange wedged in my ribs. I got a random letter to go to the hospital I had the cancer op at last week. I went and said i was confused as I hadn’t been there since told i had cancer 3 years ago. The oncology nurse told me that i was meant to have 3 monthly checks, but someone didnt make the first one, so ive never had these, I am to go in July, but I feel a bit strange as it all seems a bit ‘too late’ Ive had an awful time and Im mentally and physically broken from all of this. I constantly feel unwell and my body is in pain. I’ve had bloods done by GP and had scan when i went in with the bad pain now and again. The one tome i saw oncoligist he said they had to tread carefully as the type of cancer i had doesn't always show up in blood work, but no one I’ve told this too, seemed/s bothered. Im constantly exgausted avd feel ill. Sorry for long reply 

Hi

Oh my goodness your post sounds like such an ordeal. Can you not go and speak to your gp and ask for a referal because non of this sounds right for sure!!!! You’re clearly not well and you need someone to sort out what’s going on with you. I think gp’s often only take notice of you if you just keep going back and back, don’t give up until they do something.

Really hope you get this sorted soon, take care of yourself x

I know, it has been a hard time. I never in my wildest dreams, thought any of what has happened would be possible, yet here I am.  It doesn’t feel right either, but I feel ill and  exhausted, so I’m just going to let nature do its thing, I’m tired of fighting and struggling for help, and reading it back just made me realise what a car crash it has all been. Thankyou for your kind reply 

I would scream from.the roof tops till.someone listens to.you kallca 

You need to know what's happening and some pain management I tjink, 

Maybe speak with someone from macmillan to help.and advise you

In January I had bloods checked and my ca125 was 32 previously was 13 the surgical consultant I saw wasn't.my usual guy but he said I was still in range not to worry,

Didn't sit right with me so I range nurse and she sorted.it, 4 weeks later it had doubled again had ct scan and the cancer was back, if I had listened to that Dr god know where I would be cos I don't have any other symptoms.

Please listen to your body and don't stop.till.youre happy you have been checked properly 

Xx

Your post is heart breaking, you really need to get to the bottom of all this. Maybe go to a different gp in your practice, new set of eyes might be what you need. Please don’t give up, have you family that could go with you? It’s hard when your feeling so unwell and exhausted but you need someone fighting your corner!!!

x

I did in beginning but they just started treating me like a pest, and I felt

like one. I have had bloods done, each time i had the admittances with the agonising pain after losing the two sections of bowel. Its all easier said than done. One dictir actually mentioned id had alot of input, but failed to mention I was then sitting with two sections of bowel less. I have moved so seeing a new GO next week . One thing for sure, if its back, its been back for a while. Thankyou for reply

I have moved so Im seeing a new GP on Monday, Im dreading it, god knows what they will think of me. They have put some meds im on up so i can’t feel the orange in ribs, they’re going to have to put that up again for sure. I went through lockdown alone with myself. Someone is going with me, thankyou

1. Relieved you have someone going with you. Really hoping you get a good gp and you get to the bottom of it all. Let us know how you get on x

Not sure where the 1 came from at the beginning of that message, lol