New diagnosis

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Hi, I was diagnosed with ovarian cancer eight weeks ago, after a scan for a PE revealed fluid in the abdomen and cakes on the omentum .Surgery not an option and chemotherapy was available but at a distance with no chance of it being curative . Have ascites and little appetite , constant wind, and am exhausted after little effort .Pleased to find this forum .

Thanks or reading,

aisling 

  • Hello Aisling,

    I am with you and feel for you.  I also have ovarian cancer that has spread to my stomach in various places and suffered badly with the ascites until chemo.  My cancer is also not curable, but although chemo brings problems of its own, which appear to vary quite a lot from person to person, the extra stone of fluid I had gained has now greatly reduced.  I am about to have my second cycle of chemo, but it has taken most of the first to get to grips with which meds etc work for me and in what quantities.  However, the positives for me outweigh the negatives, as I can now move a little more easily and certainly breathing is easier.  I still struggle with pain and nausea, but as I say, we are slowly getting to grips with this and I am learning to eat small and often, peppermint tea for the wind, various laxatives and the dreaded prunes for the constipation and pain relief meds to cope with it all. 

    Before the chemo, I could neither sit nor stand for more than a few minutes before exhaustion and pain set in and now I can walk short distances, sit for most of the day and enjoy the company of family and friends until my strength further returns.

    I don't know if any of this is of any help to you, but I feel way more positive and hopeful for some quality of life than I did 3 weeks ago.

    If there's anything specific you want to ask, feel free.  I'm happy to answer anything I can and in the meantime, I wish you the best of luck.

    Hugs

    Fatface xx

  • Hi there, it is so nice to read your positive post,it can be so hard but definitely helps staying positive and taking one day at a time.

    Sending hugs 

    Maxine xxx

  • Dear Fatface , thank you so much for your reply and for reaching out. It was lovely to receive your message . I am so glad the chemo is helping you . I am feeling good today as my godchild and her husband and wee boy have just been for coffee . It was great, as I hadn't seem them for three years with the lockdown - I live on an Island in Scotland and they live down in England . It was helpful to have to make  an effort with coffee and cake for them- helped me to feel ‘normal’ Relaxed .. take care , hugs, Aisling x

  • Hello again, Aisling.

    That is lovely to hear.  I have to say that I live for the visits from my children and friends, and feel for you being so far away.  Thank heavens for Facebook, Whatsapp and such like for face to face calls.  My ex husband and father of my children hails from Aberdeen, so parts of Scotland are familiar to me, but not the islands, I'm afraid.

    I hope things are going well for you and you have been able to make any pressing decisions regarding your potential treatment.  

    Continuing thoughts, prayers and hugs

    Fatface xx

  • Thank you, Maxine.

    Yes, some times easier than others, but ever hopeful.  I hope you are coping well and have things to look forward to, however small.  

    I had a bad run with the chemo this time, but they dealt with my reaction really quickly and I feel no worse now than the first time.  It helps having an idea of what to expect.  

    Hugs back,

    Fatface xx