High-grade serous ovarian

Thank you for your note, Wid! I am so sorry you had to go through a second surgery. I hope they got everything this time, and the chemo helps keep the cancer away for good! Where are you doing chemo? I'm at Charing Cross. I'm supposed to have my third round tomorrow, but my blood count may be too low, so I may have to wait. Are you in London now? I hope your chemo is bearable! xo

Dear Sandy, This is just to say that I have been thinking of you. I would love to hear how you are if you have time to write. I hope that your treatment is going well. And your writing! Sending love from London

The previous surgeon did not remove the uterus, though it had to be removed! So they are not sure if it is recurrence or the cancer spread to the uterus earlier regardless the chemo! I live my life on possibilities right now! Nothing is clear and the struggle seems endless! 

Thank you for asking! I wish you all the best too. 

Hello Cadence 

Yes I am in London, doing my chemo in London bridge. I had my does yesterday and not feeling a bit weak as after every dose! My cancer does not seem to be leaving for good, doctors said there is a high possibility for it coming back but I am grateful there is still a treatment for it! 

We can meet sometimes if you wish!  

Hi I am new to this group and feeling like you right now. How are you and where are you up to now? 

Hi Cadence,

I too am waiting for chemo and really feel for you.

It must be very difficult to be away from your loved ones, but please know that you are not alone.  I am feeling a lot more positive now that I have read what some other people have had to say, and the belief that you will get through this is really important!  From what I understand, the symptoms improve after the first or second session of chemo, so that is something to look forward to.  

If you need to talk on here, I am happy to listen and will respond to any messages as soon as I can.  I don't live in London, but am as close to you as I am to most folk at the moment, given my current restrictions, so please know that I am here for you.  You can do this!!

God bless,

Fatface xx

Hi Cadence, sorry I have taken so long to reply. How are you doing? 
Feel as though I have been caught in a whirlwind of work, family, cancer. Finished my book thankfully. Opened my largest exhibition to date and have just returned to my PhD as a distraction from what is going on. Not sure how long I will manage to keep it up but I have chosen to complete as part of what at the moment feel like some of my final decisions. 

I managed three chemos before they decided my tumour is platinum resistant. Currently I am waiting for an appointment next week with a new doctor, different hospital, to go on a Phase 1 clinical trial (if I am accepted). The taxol had an effect on my lymph nodes and I was out of the wheelchair and walking again (even went for a couple of runs!) but as I wait I am experiencing more pain again, which is getting me down. (If anyone out there has any experience with Ovarian Cancer recurrence clinical trials please comment, just adding this is in as there isn’t much written in the forum about them.) 
The trial is my last hope. I have heard quite a few miracle stories from people who have been on them, so as everyone is I am now hoping to become one of those stories myself. But I am also trying to come to terms with the fact I may become part of a different story now sooner than I would like. However I remain hopeful, not giving up yet. 
I would love to hear how you are and how the treatment is going for you. I hope that things are going well but also please feel free to moan. We definitely need spaces to be honest about what we are going through. 
Sending  love.