Whirlwind 3 weeks after doc did CA125 test which prompted 2 week wait tests

Hi Esperanza and a very warm welcome to the online community

I'm sorry to read that you're not feeling too good emotionally and also have worsening symptoms.

I had a different type of cancer so can't comment on your symptoms other than to say that perhaps you should have a word with your CNS. I know from the replies I've seen in the ask a nurse section of the online community that they usually recommend speaking to your hospital team for new or worsening symptoms.

Emotionally I think we all understand how hard it is waiting for tests and treatment. What worked for me was immersing myself in my hobbies and interests so that I had as little time as possible to think about the 'what ifs'. I know other people find mindfulness really helpful and I think there are a number of free apps available if you want to give it a go.

Macmillan have lots of useful resources and you might find these on cancer and your emotions and getting help with your emotions helpful. You can also phone the Support Line on 0808 808 0000 and chat to one of the advisers. It's free to call and they're available every day from 8am to 8pm.

Sending a virtual (((hug)))

Thanks for the hug and reply. My consultant examined me again yesterday when I saw him and told me what red alert symptoms to react to, ie contact cans and straight to hospital. My op is in three weeks and pre op next week, so at least someone medical will check in on me next week. We have quite a long way to travel, with living in a rural area, but my husband drives me, fortunately.

I'm pleased to see that you saw your consultant yesterday, I find it really does help with worry when you've had a chance to speak to someone medical

Yes, it was reassuring as he felt the mass again and I am paranoid about developing the classic, ie symptoms listed on the nhs website, which I didn’t have when my doc sent me for tests. Tummy is a bit bigger but he said not worryingly. I guess it is 5 weeks since I went to the doc now.

For me waiting for definite dates for Chemo and operations has been tough. Once I have dates I can take it one step at a time and as latchbrook suggested, keep busy with hobbies, friends, family etc. and speak to professionals when you can and need to. In the last few days prior to my big op, i.e. removal of Ovaries, Falopian Tubes, Fatty skirt and Appendix, I began to feel more anxious, and again when I had a bad reaction to some of the drugs in my 2nd chemo on an inpatient ward and a less severe one for my 3rd that meant both took much longer, I was also a lot more anxious prior to my 3rd. One of the Nurses reminded me to try to concentrate on my breathing slowly in through the nose and out through through the mouth. The order is very important or you could start hyperventilating. It's amazing how it calms you after 3 or 4 of those. My cancer also spread right into my groin but they knew that was what it was from the first diagnoses as I had internal and external CT scans before meeting with consultant. I also try to to make it a sort of problem-solving exercise and try to relax when having any procedures because I assumme if my muscles are relaxed it willhurt less. Its whatever works for you really. I have been very fortunate in having wonderful support from family, friends and professionals as well as friends who have had this or other cancers. It's been reassuring how friends have opened up to me about their conditions too. One had her Ovarian 20 yrs ago and is still going strong. Take care and lots of luck.

Thank you so much for your advice, warrior. I have my op tomorrow. My friend sent me the link to the breathing you mentioned, which I have been doing daily now, which is helpful. I’ve also joined healthunlocked through the Eve Appeal which has advice on. I’ve been writing a blog, for the countdown to the op, with daily photos and who has messaged me etc. We’re on the second jigsaw. Met anaesthetist who was nice to me, yesterday. Anxious about what they will find in there tomorrow but chilling in bed at moment, looking at the view of our lovely farm. Will do my breathing now, since you have reminded me. It’s tough waiting in covid times esp

Good luck for tomorrow  

Thank you, unimum.