Diagnosis Waiting

Hi.  Sorry you find yourself on this group. It will take some time for it to sink in properly. You find yourself in tear often on the coming days and weeks. It's so scary not being in control of what's happening to you. I hope you have a good support system to help you through this. I am 1 year and a half since my diagnosis. Unfortunately there is no cure for me but treatment to slow it down and thats working so far. xxx

Hello there

i was diagnosed last April with stage 3 ovarian and peritoneum cancer.  I had four cycles of chemo then a full hysterectomy plus whatever else they could remove.  Five weeks later I had four more chemo cycles.  I was told in December I was in remission but two months later was told it was in the abdomen.  Have just finished 12 more chemo sessions and whilst I have responded well to chemo I now have lesions on my liver.  My oncologist is now putting me forward to take part in a clinical trial.  The bottom line of all this is you must keep positive and have faith in your oncologist.  It’s so hard at times but keeping positive is really the only option.  Keep sharing on this forum as they truly understand what you are going through and sharing helps

Sending lots of positivity xxx

Hi All,

I too am at that difficult stage of my OC being incurable but treatable.

Found it really hard, after only 3 months in remission following surgery and 6 cycles of chemo, to get my head around this new kind of fight. But fight is what we all have to do on this journey right? -  and, whether it’s to rid ourselves of this disease for good, or to show it who’s boss, we must try to stay the strongest and most positive version of ourselves we can be to get through.

I’ve found that having a good support network helps so much, and also finding little things to look forward to and take control of in the short-term rather than focussing on big/long-term plans and all the unknowns over which I have no control.

CJH1, I hope the clinical trial works out well for you - is it at your local hospital or are you having to travel for it?

Sending positive vibes to you all

Bxx

Hi B

Like you my cancer is incurable but thank goodness it’s treatable.  Like you last year I had 8 chemo cycles with surgery half way through.  In remission for 2 months then diagnosed with cancer in the abdomen.  Whilst I have responded well to chemo I now have lesions on my liver which have grown.  The positive is that I am still going to be treated.   Totally agree with you the key is to be positive.  
Have faith in my oncologist.  
The clinical trial is London based and I live in North Worcestershire so bit of a jaunt to get there.  It’s once a week for 18 weeks.  I had a phone call from them this morning and I have a video conference call with them next Wednesday.  Think this sounds encouraging, just hope it won’t start till after Christmas as I would like a bit of a break from chemo.  

Sending lots of positivity to all on this journey 

Carole xxx

Sorry to find yourself here. It's tough , especially the waiting. I felt so much better after surgery (despite it being brutal) knowing the surgeon had removed all visible disease was s huge relief. It's very normal being tearful, I felt like a deer in headlights and just sat stunned most of the time.

There is nothing more that you can do now (this was the advice I got) but put yourself and faith in the hands of your surgeon, oncologist and the Oncology team , they will look after you. 

All the best.

Morning I also have stage 3 with it also being in the peritoneum and liver. I get completely where you are, I have had 2 cycles of chemotherapy with 4 more to go then surgery and then more chemo. While I was waiting to start the chemotherapy I took my dog to the coast cried looking at the sea. But came back a bit different still have many moments but I focused on enjoying every day every week every moment. Talk to people I live alone so the phone is very important to me. I'm probably daft but every week I think of a positive for the week even if its just getting out for a coffee. You can do it we are strong women. 

Sending you love it must be tough living alone, which county do you live in ? I'm in Hertfordshire. My dog  is a big comfort to me. Hope chemo is not making you feel too poorly.

I'm incredibly lucky I live in Staffordshire and my family are in the area I only moved back here in January this year having lived in Northamptonshire for 30 years, family were worried about me being so far away miss my friends but given this diagnosis thank goodness I moved. The chemo isn't so bad the week after my all day infusion your wiped out the next week I feel a bit better then week 3 fine this is the week to get out and about. I have cancelled my holidays for next year just going to do England last minute get aways. In the middle of this mess I lost my beloved dog but again with family support I have a puppy who is keeping me getting out every day. Keep looking for the positives 

Glad you're with your family. So lovely to hear you have a puppy. 

Good to plan little things to look forward to. I'm going on s wreath making course tonight with my friends and out for lunch with another. So busy day for me (Chemo was Monday , also 8 hour infusion) so feeling slightly peeky ... But hey ho.

Hello

i live on my own too, but one of my sons is local which is great.  I bet your puppy is keeping you occupied.  My son has just had a puppy so other than the grandchildren I now have another reason fowanting to visit

I am a bit nervous about my video call with the London hospital next week.  I was  hoping to get a bit of a break from chemo as this will be my third lot, but being positive at least I am able to have it

Best wishes and positive hugs