Granulosa Cell Tumour

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Hi,

am new here , my story ..
March 2018 I had I had one tumour removed and both ovaries and Fallopian tubes , follow up was inhibin blood tests 6 monthly and chat with consultant , I permanently had niggling pain on my right side and in May this year inhibin shot up to 368 , I then had CT followed by MRI which found 5 Tumours, I then had major at the end of September 2020 and had womb removed , bowl resection , omentum removed , debulking , more small removed as well and started chemotherapy on 5th November having my 3rd round of 6 today , I’ve lost all my hair and feel so ill for 2 weeks , have a few days of feeling ok and then it all starts again , I had a Ct on December 5th and they have found a lump in my breast which is going to be investigated, I’m so angry at life right now I don’t even know how to explain it , I just want me and my normal life back !!

  • Hi 

    You seem to be going through so much at the moment so it's no wonder that you feel angry and want your old life back.

    I don't have personal experience of either a granulosa cell tumour or a breast lump but I noticed that your post hadn't had any replies yet. This might be because the former is a rare type of ovarian cancer. However, by using the group's search bar I have found these previous posts which mention it. If you haven't already done this yourself then clicking on the link I've created will take you to the list. You could have a read through them and respond to any of the more recent ones if you think the poster might be able to help you further.

    I hope you don't mind me suggesting that you also join the very friendly breast cancer group as it's a great place to ask questions and share experiences with others who will know what it's like waiting for a breast lump to be investigated. If this is something that you'd like to do just click on the link I've created and then choose 'click to join' or 'join' (depending on the device you're using) on the page that opens. You can then introduce yourself and post questions in the same way as you did here and join in with existing conversations by clicking on 'reply'. 

    Wishing you all the best

    x

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