Hi I haven't posted for a while.Am trying to find anyone else who has has a Krukenburg tumour on their ovaries and had an op to remove them. I know it's a rare tumour only 1 maybe 2% but I would love to hear from someone.I am 16 months post op and doing ok. My history is on my profile. I feel so lonely sometimes.
Hi Missymoo2
That's great to read that you're doing well but I can understand your desire to connect with others who have the same type of tumour.
I have done a search and found this post where the poster mentions that their mother-in-law has a Krukenburg tumour. You could have a look at what they've written and contact them if you want to.
x
Hi thank you for taking the time to search on my behalf. It was so kind of you. I looked up the post but am wary of contacting as it was 10 months ago. I will give it some more thought. Best wishes to everyone.
Missymoo2
I have suspected Krukenbergs syndrome, that is CRC metastases to only remaining r.ovary, I also have 4 mets in the peritoneum.
I am 68 and very worried as I've heard that OS is low and prognosis is poor.
I am glad to see you are doing well.
I feel terribly alone, husband left me in feb 2024 and no family or friends to support me , physically or emotionally.
Hi Cheekkat am sorry you find yourself in this situation but I am 3 yrs post op and living a normal life. I am on chemo and immunotherapy every 2 weeks. I have a few side effects but nothing awful. Dn't despair there are treatments for people like us. Big hug for you xxx
Missymoo2
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2024 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007