Kruckenberg tumour

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Hi I haven't posted for a while.Am trying to find anyone else who has has a Krukenburg tumour on their ovaries and had an op to remove them. I know it's a rare tumour only 1 maybe 2% but I would love to hear from someone.I am 16 months post op and doing ok. My history is on my profile. I feel so lonely sometimes.

  • Hi

    That's great to read that you're doing well but I can understand your desire to connect with others who have the same type of tumour.

    I have done a search and found this post where the poster mentions that their mother-in-law has a Krukenburg tumour. You could have a look at what they've written and contact them if you want to.

    x

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  • Hi thank you for taking the time to search on my behalf. It was so kind of you. I looked up the post but am wary of contacting as it was 10 months ago. I will give it some more thought. Best wishes to everyone.

    Missymoo2

  • I have suspected Krukenbergs syndrome,   that is CRC metastases to only remaining r.ovary, I also have 4 mets in the peritoneum. 

    I am 68 and very worried as I've  heard that OS is low and prognosis is poor.

    I am glad to see you are doing well. 

    I feel terribly alone,   husband left me in feb 2024 and no family or friends to support me , physically or emotionally. 

  • Hi Cheekkat am sorry you find yourself in this situation but I am 3 yrs post op and living a normal life. I am on chemo and immunotherapy every 2 weeks. I have a few side effects but nothing awful. Dn't despair there are treatments for people like us. Big hug for you xxxPurple heart

    Missymoo2

  • Thank you I have convinced myself this is terminal 

  • I received my diagnosis today.

    It's Krukenbergs and I have received a treatment plan from my Consultant at Basinstoke

    I am devastated , but grateful that I will get surgery within the next six weeks.