Ovarian cancer

Morning Jean.... ohmydays I'm so sorry to hear your news and don't beat yourself up for questioning things, it must be a massive blow as it is for us all but you've come to the right place for advice. ... I have overian cancer stage 4, I start chemo Feb 21...and I too worry what's ahead but at the end of the day we must put our trust in the medical team helping us and put trust in ourselves, we are stronger than we think! ...I do understand it is a lot to grasp but we will get through it ...

Others will reply who might know more, ,  I just wanted to let you know we are all here to support each other,  we are all, brave, strong and always fabulous!!!!

Sending much love,..

Devistating news for you. I also have it in my omentum I initially was having 6 cycles of chemo but after 3 my tumour had reduced from 7.5 to 3.5 so I could go to surgery. My gynaecologist did a laporoscopy last week just to make sure I had nothing lurking but all OK and I'm waiting for the hysterectomy, debulking and whatever else is needed . I take a list of questions in a book every time I see somone. 

It's tough but I just go with the flow take each day as it comes the teams are supportive.

Let us know how it goes, sending virtual hugs.

Sue 

Hi Jean just stopped by to say hello .   I too had BC back

in 2013 , but got diagnosed with stage 3C ovarian in February 2020 - not BRCA just unlucky- I had 6 chemos then surgery full hysterectomy plus cervix, appendix and partial omentum, then 2 more chemo mop ups.  I was given  NED November 2020, and now have 3 monthly scans plus 2 years maintenance on Olaparib.  Trust your medical team and don’t think too far

ahead, just concentrate on your latest treatment , otherwise you will get overwhelmed .  We are all here for support, good luck with your treatments.

love 

Hi Jean, I am so sorry to hear this. If you are based in the UK I strongly recommend that you get a second opinion from a consultant named Mr Alan Farthing based in Harley Street. In 2018 I was facing a similar surgery to what you are describing. I was told I needed to have a full hysterectomy, omentum removal and part of my bowel removed and would therefore be living with a stoma bag. I was booked in to have my surgery and had done my pre-op assessment and then someone suggested I get a second opinion from the above-mentioned consultant. I am so grateful everyday that I did. I went on to have my surgery with him and all that needed to be removed was my tumour followed my 6 rounds of chemo, everything else remained intact. I am now 3 years ned and am thankful everyday that I got that second opinion. You can contact his secretary Dawn on 0207 487 4394 to get in touch. I really hope all works out well for you.

Hi Jean, I have just got back from my oncologist appointment, in July I will have reached 5 years since my tumor was removed.  I remember the day I found out I had Ovarian Cancer, it was the day of my daughters wedding, which I sadly missed, I was in hospital with sepsis and we was being told that the next 24 hours were critical oh and we also found a tumor.  The next  6 months were a blur 2 x major surgeries the last being the big completion surgery, full hysterectomy, removal of the omentum and part of my bowl, my appendix and part of my aorta, a stint in ICU and a week later I was home. I was scared to say the least, i still am as I will never be given the all clear, these are all natural feelings for anyone that has had cancer, it is always the fear of will it come back.  When I was waiting for my last big surgery I searched a number of Chat pages because what I wanted to hear was a message from some who had what I had, but was 2, 3 or 5 years down the road, that they are still here fighting, that all will be ok, times will be hard and a little rocky but you will be ok, that was what i needed. I never found that message, so here is one for you Jean.  I know it is scary, you are allowed to feel scared, fear of the unknown is what i struggled with the most, however, you will find your inner strength, your inner warrior, you will still get up in the morning, go about your daily routine, you will still do your hair, put your makeup on, you will still laugh with your friends and cry with your family.  We all have a choice, don't be bitter, don't dwell on the why me, when your given lemons make lemonade,  always try to be positive even when your having a bad day which by the way is also ok, but don't have a bad day alone tell someone, a simple hug is sometimes all the medicine you need.  I am sending you Jean and all the ladies out there positive vibes, we are strong independent women,the world is a better place with us all in it,  I hope you all win your battles, x 

You sound a wonderful, strong lady miss Bev.can I say: I've searched and searched for a story I could relate to, with a ' Happy Note' You have given that to me...

Thank you!!!!! 

Hi Hollybud, thank you, I know I struggled to find a message from someone that had gone through what I was going through and had come out the other end and living their life, well I am certainly doing that, I have two beautiful grandsons, two amazing daughters and a wonderful husband who if i'm honest doesn't understand why i cry most days, or have a day of reflection but he gives great cuddles and that's all i need, that's all we all need, to know we are not alone, whether it is a great husband, daughter, son, mum ( i lost mine to Ovarian Cancer just over a year ago), dad or a really good friend,  we should never feel embarrassed to ask for it because if someone needed that from me I'd feel privileged and honored to be asked.  so here is a HUGE virtual HUG to all you ladies, stay strong, you've got this. xx

Ahr! Bev you made me cry... Good tears thou, you are so right in all you say... I am so pleased your life is full of love and you do right to reflect on the good as sometimes we do get lost in the ' horrible' side of all this, which is only natural,.. it might sound strange to say this when I'm facing the unknown the fight of my life but I do feel blessed to have a wonderful family and a good band of friends, I am petrified of the cancer and the chemo, as it is strong but you know what I'm stronger! Your story is a lesson to us all..

Thank you for sharing...oxo

Hi poc 19

Thank you for your message and info,I definitely have the cancer in my omentum as i had biopsies from there ,so im happy with my surgeon, just want to get on with it nowand get to the other side of the surgery,then face the chemo all head on I might add.

I'm petrified but been here before with breast cancer although not as major as this.

They say God only gives it to those that can carry the load,well im a strong girl and i know even with all of the bad days i will get through this.

Thank you all for your kind words and encouragement ,I know I will get through this, it will be one heck of a ride and the main thing for me is to remain positive and stay healthy and strong.

I have some wonderful friends neighbours family and my wonderfull husband who has been by my side through the good and bad times.

So to all of you ladies out there stay strong and positive, I hug you all right back.

As I have said before God only gives the load to those that can carry it .x