Raised CA125 after having been in remission

Hi Melo99

I'm sorry to read that you have the worry of recurrence hanging over you. I had a different type of cancer so don't have the experience you're looking for but I noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list where it'll stand more chance of being seen.

Wishing you all the best for next week

x

Hi - it’s been a while since we last spoke on here, I really hope your scan is clear and I will be thinking of you today.  Let us know how you get on with results on Thursday.

I have not had to face the prospect of reoccurrence yet, But I think we all are only ever a ct scan away from more treatments , so I will have everything crossed for you.

love 

Hi Melo99

I had a raised CA125 a while back, I had a scan and all was well. 

I know how worrying it is, I’m waiting on a scan now but am hanging on to positive thoughts that it’s nothing. My scan is on Tuesday. Let’s hope we both have good news soon.

Please let us know how you get on. Thinking of you xxx

Hi Everyone, thank you so much for your support... well I got the news we all dread this morning and the cancer has returned unfortunately. It's on some annoying bit of my liver than means they can't operate, which I was hopeful they'll be able to  and because of that there is no real chance of remission again.  However, there are plenty of treatment lines to try and I'm going into a trial my oncologist is heading up - someting to do with chemo and olaparib together, then will go back to the Paclotaxil as i'm still platinum sensitive.  Anyone else in a similar situation?  can you live for years with ongoing treatment?  i'm now thinking of this as a chronic disease and i'm feeling really strong xx

What a wonderful strong person you are I wish you all the very best 

Hi Melo99, sorry to hear you got bad news but at least your cancer is treatable. I'm a member of the Living with Incurable Cancer group, and there are many people on there who have been living for years with cancer which is incurable but treatable, so you have every reason to be optimistic.

Sarah xx

Sorry the news wasn’t what you were hoping for but, as you say, a positive attitude will get you through. 

I’m trying to think of something useful to say but when all is said and done, you already have what you need, a great attitude and lots of positivity.

We’ll be looking forward to lots of updates telling us all how well you’re getting on.

Sending a hug xxx

Hi Melo99

was thinking of you today , sorry to hear your news - you must be devastated, its what we all dread to hear .  Im glad that you still have treatment options, and your own doc is in charge of your clinical trial .  We are all here to support you , take care and Keep in touch

love 

Hi Melo99,

So sorry to hear your news, and can completely understand how you must be feeling right now.

I too had surgery in 2020, followed by 6 cycles of Paclitaxel / Carboplatin and, when that finished in May, was in remission. Unfortunately though, by September the cancer had returned - in the pelvic area, and like yours,  inoperable but treatable.

In the first few weeks after being given the news, the thing I found hardest was getting my head around the shift from thinking the treatments were my route back to my old “normal” life, to them being a part of my life ongoing, for however long that might be. I’ve learned to deal with it now by accepting that the C and I will always share this body - but still just as determined to show it who’s the boss!!

I really hope the trial you’re starting on works well for you. But even if that doesn’t prove to be right for you (as was the case with the regime of Taxol only I was on from September to December), there are so many options to try, so we just have to keep  faith in our medical teams and try the next thing. I’m now on a course of Cisplatin / Etoposide, which has reduced my CA125 by 50% after 1 cycle which, even though I’ve yet to have a CT scan, gives me some renewed hope for a brighter future.

Its so great to hear that you’re feeling strong and positive, as riding this emotional rollercoaster, and living with ongoing treatments can be punishing at times. But while we still have quality of life and the means to kick our “uninvited guest”’s backside, then we still have plenty to be positive about !!

All the best on the next stage of your journey, and it’d be great to hear how you get on if you feel like posting again,

love, Bxx

Hi

I'm new to this group. In December I had a CT scan where they found a cyst on my ovary. This is the 3rd ovary in 13 years. I've already had surgery twice to remove the 2 cysts and my left fallopian tube. I had the blood test last week and they came back raised. I'm in severe abdomen pain in my groin and have had no periods as I have a myrena coil in. I'm 50 years old. I see my gynaecologist on Friday 11th February. Does this test tell you if its cancer or not? I have bloatedness, constipation, stomach pain and weight loss that was 8lbs in 2 weeks and I have to run to the bathroom to pee. Can't hold fluids for more than 1/2 an hour. When I lost weight I was peeing like a horse and couldn't go out without needing to go.

Many thanks

Oh and if you're ever going through it then I'm right there with you. I'm always here to help if I can.