How do you cope with the waiting?

Hi Dolz

i’m in a similar position to you. A CT scan found a massive (28cm) ovarian cyst. Like others, I just thought I’d eaten too many lockdown cakes. In the last fortnight I’ve had ca125, ultrasound and MRI with contrast and am waiting for the results. I feel worse than before the scan as I know the size of my growth. It’s difficult, I’m fine one minute, then find it difficult to concentrate on work. Like you, I’m working from home. Being in Teams/Skype meetings is ok as I’m interacting with colleagues. Producing reports when I’m on my own requires immense additional focus. I keep telling myself that I can’t do anything to change the situation but in reality, I have all the ‘what ifs’ racing around in my head. I think the not knowing is possibly harder to cope with than receiving a diagnosis, as once you know what you’re dealing with, you can focus on treatment and associated well being. All I can advise is be easy on yourself.

One of the main things we do is keep telling ourself that everything is going to be ok ,  dinner time try to eat as much green veg as you can handle does wonders for you ,

As for passing time we either spend it in our garden or going for walks not to far or to much but a little exercise each day can help the mind .

And just remember it's OK not to be ok and keep telling yourself I'm going to beat this keep positive I know its hard .

You will be ok x

Hi,

im new here and I’m a very scared mam. My daughter is 26 and during An unlit sound for a suspected miscarriage was told that she had a mass on her left ovary ! 

this was on Friday and yesterday has now received an appointment through for Tuesday. She has an 18 month old daughter and thinks she is going to die. 

what happens at your first appointment and what are the next stages as we have had no opportunity to ask any questions? The wait it torture x

Hi Leabea75, 

Its ok to be scared. I am 30 with 3 children under 8 and my mum also cries for me. Seeing what my mum does I would recommend staying positive, looking at ways to put your daughter at ease. My mum tries to take care of things around me so I can focus on what's going on. It does help. I feel that she has an appointment already that is a good sign. Is that next appointment for a CT Scan or consultation?  After my ultrasound they booked me for bloods and CT. Those results were given to my consultant. I just got my call yesterday from my consultant they confirmed its an 8cm mass on my remaining ovary and they want to do a hysterectomy next month. I have a consultation appointment in a few weeks to ask all the questions I need to before this. If it goes the same way for your daughter and they see it as urgent things will move fast xx

Thank you. I got my call yesterday so I finally know what is happening. The change in myself was drastic. I am more focused and planning for my operation and aftercare.

She has had an internal ultra sound last Thursday and then got a call from her Gp on Friday to say they had found a mass on her left ovary. He told her they are treating it as cancer but hoping it’s not and then text her a leaflet over regarding an urgent 2 week referral. The letter came from hospital and her appointment is on Tuesday coming. That’s all we know as had no further calls from anybody.

so do you think they might do bloods and CT scan on Tuesday? It’s the not knowing what we dealing with that is the worst.

Sounds like they are moving fast with you too which is good and I try not to show any emotions where she is to try and keep her positive.

I break my heart at home xx

Blood will more than likely get done yes as for c.t scan where we are in nottingham it takes a few weeks to come through don't let it beat you up as I did and its very good they are moving fast thats what you want , they could possible talk about an operation also like my wife had so until you get to this 1st appointment no one can realy tell you to much but this is roughly how it goes mate.

Just stay strong she can beat this with all your help ok x

Thankyou I feel a bit better now 

Thank you.