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Hi im sally me , i am 70 years old i had a small bowel MRI scan and they found fixed pelvic mass   i was refered to gynocologist for further CT scan i was given a total abnominal hysterectomy bilateral salpingo-oophorectomy and frozen section and after the operation i was told it was not cancer,then 9days later when all the biopsies were done they found this very rare cancer in one of my overies they have sent it off to a proffesor who deals with these types of rare cancers (Mesonpheric like adeno carsanoma ) will be 2 weeks before they get results to see what stage and what treatment i will need . bit of a shock to me and my family being told i didnt have cancer then 10 days later told i do ,got to wait now to see whats what . 

  • FormerMember
    FormerMember

    Hi Sally

    what a shock for you and your family :-( I can’t imagine how that felt to be told it’s not - and then told differently. I have my surgery booked for 13th and was told I’d know if cancer or not after the biopsies on what they remove. I would rather not be told anything and wait then ten days than be given good news which then changes. I hope you are as ok as you can be. Waiting is such an awful thing x

  • Thanks for your concern , it was a massive shock but hopefully i will get a good outcome fingers crossed good luck with your surgery hope all goes well x

  • Hi Sally,

    I am sorry to hear your news,and can totally understand how you must feel. Five years ago when I was 70 I was diagnosed with womb and fallopian tube cancer. Like you I was shocked as there is no cancer in my family. Anyway I had a hysterectomy,plus the salpingo oopherectomy. My womb cancer was a normal type but the fallopian tube was in one tube only but was serous high grade.

    It was decided that I should have chemo which I did and I had 4.5years free of cancer. This year however the fallopian tube cancer has returned on the momentum. So I am due to have my last chemo on 16 October,and then I will follow that up with a maintenance drug. What I am trying to say is that I will be 76 next January and so far I have done well with the chemo.

    I wish you well, take care. Georgette x

  • Thank you georgette for your imput it makes me feel better knowing i am not on my own , hope your last chemo goes well and your maintenance drug keeps you ok . i am dreading the chemo Thermometer face keep well x sally me x

  • Hi Sally, I think we all dread the chemo,but I found that once I had a plan in place,& had been to the chemo unit once it never seems so bad as you think. It is doable & there are so many things they can give you for side effects these days. I am not one for taking medication and generally I am otherwise fairly healthy. If you do get problems with chemo, do get in touch with your specialist nurse,or someone in the chemo team. What I am  trying to say  is don't put up with a problem should you get any as there is always help out there. Of course you will get days when you feel exhausted & that will not last to long & what I found was after the first chemo there seems to be a pattern that follow with subsequent cycles. I have found with this chemo that I have on a Friday, & Sat,Sunday & Monday are fine then on Tuesday & Wednesday I do very little which is not like me at all, but I have learnt to ride through those days and then gradually I improve which is great.

    Try not to worry to much & the best thing if you can is to stay positive. It is hard at times but that is what I have tried to do.

    Stay safe,& thank you for your message. Le me know how you get on. Georgette. xx

  • Hi thanks Georgette for your advice feel a bit less scared about the chemo now , i just hate the waiting i have appointment with my consultent on the 15th oct he will have the results back to say what stage and what treatment i will be having .will let you know Thanks again stay well Sally me xx

  • sorry it took me so long to reply,i had my first chemo on the 4th nov was due to have Paclataxil and carboplatin but when they started i had a very bad reaction to the paclitaxil and they had to stop it . that was awful the week after i went for a the other half that was corboplatin and i was fine with that ,this week 3rd dec i go for docetaxil and carboplatin  just hope i dont have a  reaction to that not looking forward to it at all x has anyone else had these two drugs together xx

  • Hi Sallym Sorry to hear that you had a bad reaction to the paclataxil, quite frightening I imagine. I hope that you get on with the docetaxil and carbo ok. I will be thinking of you tomorrow. Take care Georgette x