Hi, 2 years ago by chance I discovered I had a Granulosa Cell Ovarian Cancer Tumour. I had no symptoms, I felt well, I was however in menopause and struggling, eventually I gave in to the family and visited the doctor to see if there was any help available, I didn't want to go on HRT. The doctor prescribed me with Oestrogen patches. About 9 months later I was rushed into hospital with sepsis, after a number of scans etc they identified that I had a cyst on my left Ovary which had turned septic, they also identified by chance a Granulosa Cell Tumour in my pelvis, my husband and I was given this diagnosis on our daughters wedding day (which I sadly missed). The first thing was to stop the patches, immediately. The first operation 2 weeks after diagnosis was an oophorectomy of the left Ovary, Cyst and the Granulosa Cell Tumour, following that, the next surgery was 4 weeks later, they called it completion surgery, I had a full Hysterectomy, they removed the Omentum (fatty apron covering the bowel) and my Appendix. I am monitored every 3 months, I have regular blood tests and CT Scans. I don't know my life expectancy, I don't know if Cancer could come back and if it does when that is likely to be, this is a very strange and worrying situation to be in.
Today, my mum was diagnosed with Metastatic Papillary Serous Carcinoma of High Grade likely Ovarian Origin, I cant put into words how worried I am. In English I haven't go a clue what type this is so I have taken to google, I believe this is along the same lines as what I had, if so, can anyone tell me what sort of treatment plan she will have to undergo? also, is it hereditary, I have two daughters who I am also worrying about now, is there a gene test they can have to see if they are prone to this type of cancer? is there any reassurance I can give them?
Hi and a very warm welcome to the online community
I didn't have ovarian cancer so can't answer any of your questions but noticed that your post had gone unanswered. This could be because the right person hasn't seen it yet or that it's slipped off the first page before others have had chance to read and reply. Anyway, by replying to you it will 'bump' it back to the top of the page where it has a chance of being seen again.
If you don't get any replies you could post your questions about your mum's treatment plan and whether ovarian cancer is hereditary or not in ask a nurse and one of the specialist nurses will respond within 2 working days.
When you have a minute it would be really useful if could pop something about your journey so far into your profile as it helps others when answering or looking for someone with a similar diagnosis. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Edit Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
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