I was told NED after stage 3 OC. The cringing feeling i had since diagnosis hasn't gone away and i have sleep disturbance apart from abdominal pain no more symptoms but i wonder if it is back? Does anyone else have these symptoms and I wonder if it means anything
Hi , I hope you don’t mind me popping into what isn’t my group, I am looking through unanswered posts and popped into the group to say hi. I have a different cancer, metastatic melanoma, which spread to my ovary in 2016 then on immunotherapy for a year, I became NED and then a year later had a recurrence, had surgery and I’m on adjuvant treatment til March, I have a scan tomorrow to check if I’m still clear, so I can appreciate today the wobble emotions.
When I look back, I am not sure I could detect when the scan would be clear or when it would throw up a blip, in fact the last recurrence was definitely a surprise, I’d been half expecting a recurrence on each scan and not on treatment and then I had put myself in a cocky mood that I should get over these feelings, and bam there it was a recurrence with no signs or symptoms. My scans turn up stuff before it’s big enough to have an impact on how I physically feel, it seems wrong though you expect your body to know and tell you. I’m happy with the thought that my own immune system might be fighting this thing and if not the regular scans will pick stuff up.
Do you still have scans? Do you have the cancer nurse specialist contact still?
Some people believe in an intuition that you need to get checked out and should push for it, I have no experience of your cancer so I hope someone here will come back with their experience of feelings of dread or of experience of a recurrence. You can tell your cancer nurse how your feeling she won’t mind as they have a remit for the physiological side of things as well, she might be able suggest something to help either physically or emotionally. This topic also comes up a lot in the Life after cancer group where you will often see an article by Peter Harvey recommended, it’s about a sort of post traumatic stress disorder after cancer that can happen, people have said they often under stand themselves better after reading it.
If I can help at all give me a shout. I’m hoping someone in this group can give you a reply in support, and if you notice a post where you have experience that you can pass it forward and help them.
Take care KT
How lovely of you to take the time to reply. I was NED disease at my 3 month check and now it's time for 6 months. What a beast cancer is. I think you are right about the ptsd it is quite an ordeal major op followed by chemo and the mind games that follow. I do hope you are not suffering too much with your treatment and wish health and happiness to you. I have no idea whether cringe restless legs are an indication of a reoccurrence it looks like it could be but then who knows? My experience of chemo is still very fresh in my mind because i was very sick and had to go to A&E every time. Hoping not to have to face more treatment yet. I am so grateful for your response thank you.
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