Ongoing tests

Hi Beatrice,

im sorry that you are having such a tough time, I've not had your symptoms but I do know how torturous it is to wait on results, try keeping busy and distracted, do all the things you enjoy to keep busy, meditation and mindfulness videos from you tube can work wonders on a restless mind.

Lots of women pass through the group with symptoms and get the all clear so try and take one step at a time and take heart that the consultant couldn't see anything, 

good luck and let us know how you get on 

xxx

Hi Arla, thank you, I am still waiting for a positive outcome but worried re the bloods and the symptoms I have, the scan worried me also

I am doing everything everyone has told me to and started counselling for my anxiety. I called the gynecologist secretary today, they have my results but would not tell me over the phone, saying they would letter me and my GP, could this be a good sign? How are you told if the news is not good?

I know i am impatient but i feel my life is on hold about myself, sorting my mum and a funeral to travel to.. its just so much at the moment

Thank you for your reply, I am holding on to the positive exam, he said everything looked fine so i am keeping focused on that for now x 

Hi Beatrice,

There doesn't seem to be a general way to give results, some get a phone call, some are letter and some are face to face. I got a phone call asking me to come into the hospital for mine the next day, so I kinda had a hunch. Although other people have had the all clear face to face so there's no guessing with these things, different areas and different doctors seem to do their own thing. 

Your gp might be able to chase the results for you now they are back, if you explain how anxious you are to your gp they might give the hospital a call on your behalf. 

xxx

Thanks Arla, people have been saying things like 'no news is good news' and.. 'if it was bad they wouldn't send you a letter' my head is just full of it all

I am off work at the mo and scared I will need more time off or worse, go back then need time off because I will go to stage 2 of this sickness policy, I just feel there is so much faffing about 

I will defo take your advice and if I have not heard anything by Friday, I will call my GP and see what they know x

I know what you mean, my work has a three stage sickness absence policy, I got discretion from it with my cancer diagnosis but I know that different employers will approach these things differently. I also had an understanding manager who gave me special leave and flexi leave when I was having tests and procedures before my diagnosis. The Macmillan helpline can help you with this sort of thing, there are guidelines that employers have to follow in relation to cancer patients and for carers. They also offer other practical help and assistance. 

https://www.macmillan.org.uk/information-and-support/organising/work-and-cancer/information-for-employees/your-rights.html?gclid=EAIaIQobChMI2PTXlpWX4wIVWPlRCh39egjNEAAYASAAEgKsIvD_BwE&gclsrc=aw.ds 

Xxx

I think if i go back (when i go back) if after this i get news (cancer) then i will ask for discretion and get support from my union and Macmillan..hopefully i won't be put through that

If (when) i go back, if i get the all clear, i will just try not to be off again, my sickness record was excellent until the turn of the year when i experienced pain..this is still ongoing and investigations ongoing after i found this lump a month ago

I will save that link and keep it on stand by, thanks again, life is so uncertain isn't it x

Where is your pain Beatrice? I had the worst pain I've ever experienced and it was adenomyosis, which is non cancerous and like endometriosis but inside the womb, it's really difficult to diagnose. It was like a contracting intense pain that strong pain killers couldn't even take the edge off of. 

Xx

Hi, I have constant back pain low down, in my abdo, you know where your pubic bone is? It aches and I get sharp pains left and right, kinda where my ovaries are, feeling of fulness in my bladder also this has settled for now, my tummy is always bloated top and bottom

My periods are excruciating and for the first two days it is clots, the blood runs out of me and has pooled on the floor at work which was embarrassing 

Then my periods get lighter and can last for 3 to 11 days. The sonigrapher asked me about my period and there was lots of blue and red on the scan which she drew and clicked on though wouldn't tell me anything 

I'm edgy today because if it's anything then they will call, if it's nothing? How can a person be this sore lol

I feel your pain, I had non stop bleeding and giant clots before my diagnosis, I didn't actually get a gap between periods for years (I am so daft for not going to see about it sooner, I could have probably been treated with a coil!). I had a couple of incidents too, I needed to carry a change of clothes with me.

A hot water bottle gave me the best comfort and I'd take ibuprofen and paracetamol too, it didn't totally work but it took the edge off. 

I used to get pains from my ovaries, they were stabbing pains, I had polycystic ovaries and I think it might have been ovulating that was causing the stabby pain.

It hopefully won't be too long till you hear something now

xxx

Hi Arla, yeah this period at the mo is in to the second week and stabby ovaries galore. Awful. I have been known to have a hot water bottle on the front and the back and have a cushion at work

I use a chair massager thing at home to distract the pain sensation

Ps mums oncologist just off the phone, I missed it cis I thought after 6 no one would call for me or my mum.. I was wrong. They are going to give her chemo first then radium.. I will call tomorrow first thing 

Xxx