I am new here.....and looking for some information please. I recently underwent a hysterectomy with bells on ...... omentum, tubes, both ovaries and cervix because I had a suspicious cyst on my right ovary and elevated CA125......the suspicious cyst turned out to be a 20cm endometrioma but the pathology revealed clear cell cancer on my left ovary. My Oncologist has requested staging be completed, ie pelvic node dissection, because if I am true Stage 1a, then chemotherapy won't be offered as it has only a 0.5% chance of being successful, but if I am at Stage II, this would increase to 5% (clear cell cancer is highly resistant to chemo). I am terrified of the node dissection leading to lymphodema and wonder if anyone out there who has had nodes removed is able to share their experiences with me. I am trying to balance my fears about lymphodema developing, and the consequences of this condition, against the low success rate of chemo if indeed the disease has progressed to Stage II. Any help most gratefully received.
Hi and a very warm welcome to the online community
It's perfectly natural to worry about developing lymphodema after a pelvic node dissection. I haven't had this but did have a sentinel lymph node biopsy from my armpit when I was diagnosed with melanoma. This also worried me but I'm pleased to say that I didn't have any problems.
I'm sorry to see that nobody from this group has been able to tell you about their experiences yet but replying to you will bump your post back to the top of the page where it will be seen again.
If you don't get any replies you could type 'lymphodema' into the search facility in this group to look for older posts discussing this topic. Alternatively, you could post in ask a nurse and ask about the risk of lymphodema developing and one of the specialist cancer nurses will aim to respond within 2 working days.
When you feel up to it, it would be really useful if could pop something about your journey so far into your profile as it helps others when answering or looking for someone with a similar diagnosis. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Edit Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
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"Never regret a day in your life, good days give you happiness, bad days give you experience"
