I am hoping that there is someone who can relate to my symptoms and provide advice! The reason I am posting asking for advice and not consulting a GP yet is that I am caring for my husband who has stage 4 terminal lung cancer. We are seeing his oncologist tomorrow and he has not responded well to his last cycle of treatment and I am hoping that they will not withdraw any form of treatment. I need to keep strong for my husband during his limited time. I already spend a lot of time at the cancer centre, clinics, GP appointments, visits from respiratory nurses and Macmillan nurses for which I am eternally grateful but do not want to waste time with seeing GP and possibly having to go for further tests for myself on top of everything!
I am 55 and started the menopause around 9 years ago. I take HRT. Almost 6 months ago I had some slight vaginal bleeding (the blood was noticeable after passing urine when wiping with toilet tissue). I did see my GP and she gave me a pelvic exam and said she could see some inflammation of the cervix. There was slight blood in urine. I was told that due to me taking HRT I would have to stop taking it for 3 months before any further investigation would be made. I did not have any more bouts of bleeding and had a terrible time with my menopausal symptoms whilst not taking the HRT. I was given the all clear to starting taking HRT again end of February however I have noticed blood again the last 2 days after passing urine. There is no visible blood in the toilet pan - just on the toilet paper. I have not noticed any blood in my underwear. I have developed pelvic pain particularly near either side of the hips and sometimes around the belly button area. I do feel the need to go to the toilet frequently but I do drink a lot of fluid throughout the day - around 3 litres. There is no pain or burning when passing water. The only bothersome of the blood on the toilet paper.
I really need to be able to be there for my hubby and don't want to worry or concern him about my health. I am struggling with the whole situation as we do not have any family near us to support us so I need to concentrate on my husband's health. I really would appreciate anyone's input if they recognise this pattern. I have come across the blood test CA125 - instead of possibly being referred to gynaecologists and waiting for hospital appointments could I simply have this test to indicate whether or not this may be serious?
Thank you.
Debbie
Dear Debbie
I am afraid I have no medical help to give you but when I read your message I felt I had to at least let you know someone is thinking of you.
If no one else has given you any advice and you feel you cannot go to your GP then why don’t you phone the Macmillan number on this site or use the ‘Ask an expert’.
The CA125 is a blood test which your doctor would have to arrange. It can be an indicator for Ovarian Cancer as it was for mine but it is not always the case as other things can trigger an abnormal reading.
I really feel for you trying to be strong for your husband but I am sure he would want you to get help for yourself. You may be unnecessarily worrying and if so you would be more able to help him if you could put your mind at rest. If it is something it is so much better to sort as soon as possible.
Either way I am sending you a big hug.
XX
Dear SussexOvarian
Thank you for your reply and sorry I haven't got back to you before now but been pre-occupied with my husband's health and treatment recently. I did contact my GP and stopped HRT and subsequently stopped bleeding 3 days later. Stopped HRT end of April and have to see GP in 3 months time to re-assess my HRT situation.
Thank you for the hug xx
Hello Ditzee.
Sorry you’ve had so much to do for your husband but glad your bleeding has stopped and you have a planned appointment.
I’m here if you have any more questions or just need someone to let it all out to.
XX
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