Its back?

Hi fizz, that’s a tough thing to hear & I want to give you a big virtual hug & say I am sorry you did not get a clearer picture from your doctor.  

Did you get a CA125 result too? I guess if it was me & I was told this, plus my bloods were up, I’d be asking for another chat with my current doc to discuss options, or I would be asking for a second opinion.  It is also possible to get your scan reviewed by a second radiologist.  You can also get pet scans etc to look for hotspots, although again they can give false positives.

i know they don’t like to treat you for recurrence unless it is clear cut, so I suspect that is why they say come back in 3 months. Also ct scans can be notoriously fuzzy, lymph nodes can enlarge because of infection etc.  However I don’t think I could sit holding my breath for 3 months.  Might be worth phoning ovacome or target ovarian cancer nurses to talk through your choices? Or your CNS?

i would also definitely plan to go on holiday while doing this but make sure you are well insured & can get home if you start to feel poorly.

take a breath, you’ve had a shock but remember you do still have choices about how you are treated, it’s your life after all!

wishing all the very best xxxx

Hi Roobarb. Thank you for your reply and virtual hug  it’s reassuring to be able to ‘talk’ to others in similar situations so I really appreciate your response  

My bloods are elevated but still well within normal range - this was the case a couple of months before my original diagnosis CA125 of 18. 

I have spoken to my CNS this afternoon and she is going to speak to my oncologist (he gave me the news last week) and ask him why we are waiting. She will then be able to explain it all to me. 

I did look at the CT scan with my oncologist last week and it wasn’t at all fuzzy sadly  and clearly showed a growth next to my spleen. 

I was wondering about PET scans as others with cancer have had this but it’s never been mentioned to me. Under what circumstances is it offered I wonder ? 

I am definately going in the holidays that I have already booked. I’ve had to change insurance companies but at least I am covered for current circumstances. 

Fizz

I had a pet scan to look at what they thought was spread to my lung (it wasn’t it was an abscess) - they wanted a clearer picture as they could see from the ct scan something was there but could not tell if it was malignant.  So the PET was to try to work out, if it was cancer it would show up as a hot spot.  So the PET found the spot on my lung was hot (but an infection not cance) and a spot o; my tummy was hot but they think this is an smal l incisional hernia.  So it does seem to be more sensitive at picking stuff up but also can give false results too.

im so glad you spoke to your nurse, I hope it gave more clarity. And very pleased you are going ahead with the holidays, have a wonderful time xxx