Carboplatin

Hi, sorry I can't help, am on same treatment but no sickness yet...have you posted on the chemotherapy group?

Thank you I will try the group

Hi Montypoo

You poor thing.  I am now on my 4th line of treatment and even though it is the same drug (carboplatin) as I had in the summer of 2016, I am finding I am reacting differently to it and so far have not had nearly as much vomiting and nausea.

I don't really know why I felt so ill with it in 2016 but I suspect it might be something to do with either the maintenance drugs that I had been on just prior to the IV chemo or something to do with the amount of ascites I had.  Last summer I had one cycle of chemo and after around two weeks was admitted as an emergency due to uncontrolled vomiting.  After I'd had around 9l of fluid drained the sickness decreased, but although I'd been in hospital for nearly a week it took the medical team ages to realise that this was the problem. (I was initially not on the cancer ward and I think this didn't help.)  

I wonder whether your doctors need to be looking at "the whole picture" a bit more.  Presumably you have tried different anti-nausea medication, including ondansetron.  Maybe it is time to ask for cannabis now it can be prescribed.

Good luck!

Thank you so much for your kind reply. The only other indicator is my ca125 which has decreased from 67 to 8. I am not allowed ondansetron because of a neurological condition. I called the helpline today which was helpful in suggesting alternatives. The did find what they call tiny ascites but it is helpful to know maybe I should ask about this. Very best wishes to you. It must be hard facing it again

The ascites can contribute to feeling sick, I know it did with my mum. Just wondering whether your ascites level is high? My mum had drains which made her tummy feel more comfortable and she never felt as sick once they got it under control. 

When I was on that chemo they gave me metoclopramide for sickness. One time I didn't take it and ended up in a&e. They gave me two other types of anti-nauseas which can be taken at the same time as the metoclopramide. One of the pills dissolves under the tongue. Have you got a treatment emergency phone number you can phone? You should totally be able to get help for it

Alison xxx 

Hi JayKay8,

Had very similar problems to yourself. Admitted with uncontrollable vomiting  which I was told was a sodium deficiency and was given IV for. That night I had horrendous "dreams or hallucinations" . Like yourself not on a cancer ward which was a bit disturbing, not even in the same hospital my cancer is being treated at and no-one had heard of the maintenance drug I am taking.

Still here to tell the tale so fingers crossed. Drug reduced to half as decided it may have been a reaction so fingers crossed it does its job. Hope all goes well for you and still hope someone comes up with a magic wand.

Best wishes

Janet

Janet that sounds awful, do you mind me asking but if your chemo dose is reduced does it reflect in anyway how your treatment will work?

Hi Hooked66

I finished 2nd line treatment in July (carboplatin). Cancer had responded to treatment so was put on a new maintenance drug (Niraparib) which is hoped will keep the cancer stable. Blood tests and CA125 looked promising but last bloods showed CA125 starting to go up although everyone says it is nothing to worry about.

Janet

My last CT scan showed nothing, but tumour markers were 13 from 288 so I'm being treated 'blindly ' according to oncologist ..treatment is carbo/taxol, I'm not sure whether to keep plugging on at same dose though or try to reduce it to avoid the nerve pain, was worse the second treatment so wouldn't like it to get worse again. Don't want any set backs. If professionals told you not to worry then I'm sure there's nothing to worry over..good luck! X