Hi All, I am 36 years old. In 2022 I was diagnosed with stage 1A clear cell adenocarcinoma in my right ovary. I had surgery to remove the right ovary, 50 lymph nodes in the pelvic area, my appendix and omentum. I have never had to do chemotherapy as the tumour was confined to my ovary. My appendix, omentum and lymph nodes didn't present any cancer cells. i feel very lucky. I had a fertility spare procedure so I am left with my ovary and uterus. I get monitored quite closely (scans and CA125 blood test every 4-6 months). My oncologist is now recommending to remove everything. I am scared of menopause and all the side effects and also to loose forever the chance of having kids naturally. But I am also scared that cancer could come back and it seems like a type of cancer quite resistant to chemotherapy. I got a second opinion and the gyneoncologist I spoke to also recommended completion surgery. I don't know what to do. And making a decision really unsettles me. Has anyone been through this?
Hi LindsayM11fbb9 and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
I’m Anne, one of the Community Champions here on the Online Community and, although I'm not a member of this group, I noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.
While you're waiting for replies, it would be great if you could put something about your diagnosis and treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
At the beginning I only noticed the needing to go to the toilet more. Then I could feel a "tennis ball" in my pelvic area (which turned out to be a pomegranate sized cyst) I also had constipation, bloating, fatigue and pain (like period cramps) in my belly.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
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