Recurrent Low Grade Serous Ovary cancer and Trametinib side-effects

Hi Warrington lass

Welcome to the Ovarian group. 

I am sorry to hear that you have had a recurrence of your cancer and understand that this must have been tough after being clear for 7 years. 

I am sorry to hear that you are having to deal with side effects from the Trametinib. Have you spoken to your CNS about them? Sometimes there can be medication to help with some of the effects. 

I do understand that any hair loss can affect your confidence- I had chemotherapy for my endometrial cancer and although I did scalp cooling, I still lost some hair and it can have a big impact on how we feel. At my hospital there were people that I could see and talk to about hair loss. I wonder if there is someone similar at your hospital. She was a Macmillan volunteer but came with hats and scarves and lots of tips. 

Some things I found that helped disguise the hair loss..........

spray in root touch up sprays- widely available and would disguise any thinner patches.

Volumising shampoo and condition.

Dry shampoo- really helped as it sort of gave texture and body

Also different hair accessories- grips etc- I also found parting my hair slightly to the side gave it more body. 

It maybe an idea to talk to your hairdresser if you have a regular one as I found mine was able to trim and shape mine to make it seem a bit thicker. 

With the water retention around your eyes it is something that I recommend giving the Support Line a call and asking one of the nurses about. They may be able to give you some simple tips. They are there from 8am-8pm daily. They would also know a bit more about your specific treatment and be able to talk to you about the side effects you are getting, whether they would be expected and whether being a new medication- with time- whether they would start to settle. 

Hope this helps a bit. I wish you well with the rest of your treatment and if there is anything else you need, please do ask.

Jane

Thank you for responding and the advice.  It is hard managing the side effects and I am looking at ways to combat these pretty much in line with what you have kindly advised. 
I suppose I was looking to link with people on this drug to get a perspective on if it’s likely to subside or continue whilst I’m taking the medication as this could be very long term. My trust had very little experience of Tremetinib used for LGSOC so didn’t offer much help xx

I understand- it is always helpful to find someone on the same treatment. Sometimes it can take a few days for someone to see your post and offer support. 

If you go to the top of the page, next to the house icon- there is a magnifying glass- if you do a search for Tremetinib it should bring up previous posts- there may be some info there. 

If you do the search for "any groups" then it should bring up posts across the community connected to the medication. If may be that the treatment is more commonly used for other cancers.

Thanks Jane, it is used for Melanoma but in combination with another drug, but I’ll try xx