Hi,
I was diagnosed with stage 1C3 endometrioid OC last year. Debulking surgery and 6 rounds of Carboplatin followed. I was declared NED with a very low likelihood of recurrence.
Fast forward to March and a CT showed a new pelvic mass and lung mets. Chemo was the only available option.
I’ve just completed another seven rounds. Four Carbo/Paclitaxel and three Carbo only, due to developing neuropathy and also continuing low WBC count.
A half way PET did show improvement and I could also feel a difference. However since stopping Paclitaxel, I’ve noticed symptoms returning. My CA125 has increased slightly.
My Oncology team are not much help or forthcoming with advice. I need to wait for the scan of course but it feels so hopeless at times.
Is anyone else in a similar position? Are there likely to be other treatment options if the news is bad?!
I’m usually upbeat but it’s hard coping with this. I feel so sad and lost much of the time. I put a brave face on, I eat well and exercise as much as possible but inwardly I’m struggling.
Thank you for listening. Any words of comfort or advice gratefully received.
