Mum’s got cancer

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My mum is 65, this year she has been diagnosed with Ataxia but otherwise well. A complete health obsessive and the person in the family that is the reason we no longer cook with oil and all smell of essential oils :-) Two weeks ago we were enjoying a glass of Prosecco together and life was good. The next day and over the next 11 days mums tummy swelled and was in discomfort then pain. Over the bank holiday weekend we had her to 3 different hospitals each time being sent home saying she was constipated, all they did was press her tummy. Finally on Monday night we had to call and ambulance as the pain was too much and we got a nurse there who had been through similar so ordered a CT. I fully expected her to need her appendix out or even have colitis. Two gyne doctors walked in and ruined our whole world - she has cancer and we don’t know exactly what it is attached to. I think they did know but needed further investigation, in fact i know they do. Over the next few days getting mams pain under control was a priority, her tummy is still huge and she is very much in discomfort and pain when the medication wears off. Since we have learnt it is on both her ovaries and something has shown up on her liver. They have also said it’s widespread. They did a chest CT so I am praying that’s clear. The ovarian cancer nurse specialists have been to see us and will be our point of contact. We are looking after mum at home now and waiting for the EDT meeting on Wednesday to find out where she has cancer what kind and the treatment plan. So my question is how do we get through the next week? Day? And hour? Mum is being strong and positive but I am scared. I have never felt anxiety like this. I am scared they will say they can’t treat her, do they ever say that? Will there always be treatment? I feel like I can’t hear what they say next. But I know I need to listen. How can I watch my angel on earth suffer this way. I am falling apart, she is everything. 

  • Hi,

    I completely understand how frightened you must be about your mum’s diagnosis. I’m a similar age, and I was diagnosed with Stage 4B ovarian cancer in February 2024. The cancer had spread to lymph nodes under my arm and in my neck. It all came as a complete shock—like a bolt out of the blue.

    My symptoms started with abdominal pain in December 2023. I saw my GP in January 2024, and after examining me, she knew immediately that something was seriously wrong. Almost the next day, my abdomen began to swell rapidly—to the point that I looked seven months pregnant. It was full of fluid, known as ascites, which happens when ovarian cancer spreads to the peritoneum (the lining of the abdomen). This can cause the body to produce excess fluid.

    I was terrified and completely overwhelmed.

    My advice is: try not to look too far ahead. Take it one day at a time. There will be a treatment plan, and once treatment starts, the symptoms can begin to improve very quickly. For me, after my first chemotherapy session, the swelling in my abdomen started going down within days.

    I had weekly chemotherapy from April through to the end of July. Then I underwent debulking surgery, which is a major operation where the surgeon removes everything affected—ovaries, fallopian tubes, uterus, omentum, and any visible cancer inside the abdomen. It sounds very scary, but they were able to remove all visible cancer during my surgery, which gave me a better chance of long-term survival.

    After that, I resumed chemotherapy from August to December, and my follow-up scans showed no evidence of disease.

    I’m now on targeted therapy every three weeks, which helps keep things stable and I feel absolutely fine.  

    I hope you get a plan for your Mums treatment as soon as possible and send my best wishes to both you and your Mum.  

  • Thank you so much for your response. I found this page only this morning and wrote my post. You replied really quickly and I have pondered on it all day. And I can honestly say it has significantly improved how I have managed the day - you really have helped me so thank you. I’m so sorry you have gone through this and so so happy you’re feeling well now. That’s what i hope and pray for for my mum, thank you again. Sending you love xx

  • First of all so sorry you are going through this with your mum. I got diagnosed with ovarian cancer stage IV only in April (at age of 33...) so I do really understand the worries and the waiting which is horrible. There's a lot that's similar between me and your mum and please know that there will be a treatment plan, most likely 6 rounds of chemo every 3 weeks plus debulking surgery which was mentioned below, I think that's the standard. I've just had my 3rd chemo last Thursday and waiting to hear more regarding surgery date as it depends on my next CT scan. I know it's hard but it's so important to take it one step at a time at this stage and really try to stay positive for your mum but also accept the fact that you will feel different kind of emotions and thats also ok. I'm keeping everything crossed for you both. Everyone's journey will be a bit different but there's definitely a lot of support that we can give each other. Take care x