I am going to lose my fertility, will likely end up with a stoma, and don’t even know if I will survive this all.

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I have been diagnosed with serous papillary carcinoma two weeks ago that so far looks to be stage 3, with primary ovarian cancer. The cancer has spread to the omentum, and there is also a part of the colon that is likely involved. I have no symptoms, none. This was an accidental finding that was only noted during hernia repair surgery when the omentum didn’t look right. I am 41, I don’t smoke, I don’t drink, I live healthily. I was planning to start trying for a family with my partner in 4 months' time. Due to how advanced the cancer is now, I am scheduled for a total hysterectomy in 2 weeks, which will leave me infertile. I am also at risk of ending up with a permanent stoma. I am a nurse myself, and this doesn’t help in this situation. There are discussions with the fertility clinic regarding freezing embryos or eggs, but as my cancer is advanced, they are pushing for surgery as soon as possible, which won’t give me a chance to freeze eggs. I can't have hormone stimulation anyway due to the type of cancer I have.

I have to give up so much to have a chance to live, and I don’t know if this is going to be worth it. On the other hand, I am ashamed because other people who are diagnosed late probably would wish to have a chance at active treatment. I am facing such a tremendous loss, and I feel lonely with it. I live alone and am in a long-distance relationship. I have good support from friends and my partner, but I see the strain my diagnosis puts on people. I have therapy weekly, and I still feel like that. Life changed so much in the space of 2 weeks, and it makes me want to give up. I am fearful not of death itself but of going through so much, giving up so much, putting my friends and family through so much, and dying anyway. It feels so unfair.

Update:

Not sure if this helps others worried about fertility in this situation, but I had a meeting with the clinical director of the fertility team connected to my hospital. Sadly, they weren’t able to offer egg harvesting as my cancer affected both ovaries to a degree where the risk of bleeding and cancer cell transfer to the peritoneum during the procedure was very high. He stated that if only one ovary had been affected, they might have attempted it. He also mentioned that he reviewed medical literature to see if there was any precedent or guidance on how to approach this procedure but couldn’t find any. He stated that egg harvesting is simply not done for stage 3 cancer as the risks are too high.

  • Hi.

    I can't believe that I have come through so much. Stage 3 also my ovarian cancer spread to the omentum and I had a full hysterectomy with the warning that bowel may need removal. Talk to the surgeon team. Tell them everything all your worries. I am 8 months post surgery and chemo. I feel like I survived a certain kind of death, it gets better. I was so afraid and gloomy. Sorry you feel so much loss. It is a lot. It is crazy that we van know these things and have amazing and difficult surgeries. Good luck with everything. Mindset is important. Your lived one's will rise to their best...when you or they have had enough..strength may come from strangers..stay real, stay alive..try to get private care for egg extraction if not perhaps you will find your family through another portal..meet someone who already has children or adopt...I.am childless and accept that ...if you feel that is not acceptable then put ur bound

    Aries down. Share everything with your team. Hug. T

  • I hear you. It's hard and seems like an insurmountable task at the moment,but if it's of any consolation, my mother went through a lot in her life with 2 cancers, chemotherapy and then recurrence with metastasis and now on pall chmeo. You need to live first to do all.other  things ypu want to do. Your family loves you and will never leave your side. Those who don't will fade away and thats for better.

    If you can expedite the  egg freezing,then this is an option but I wouldn't recommend delaying your own treatment or health. You health is the priority here and everything else can wait . Hope this helps.

  • Thank you, Teema. What you wrote about surviving a certain type of death resonates so much with me. This is exactly how I feel. Not only am I at risk of dying, but also the future I thought I would have died when I was diagnosed

  • Thank you, Losh. Your mum sounds like a true fighter, and I’m so sorry to hear that she is now on palliative chemo. There’s so much truth in what you say about people either sticking by you or fading away. This situation really verifies the relationships around you.