24 years. Granulosar cell tumour treatment

  • 1 reply
  • 54 subscribers
  • 40 views

Hi everyone,

I am 24 years old and had a 19cm ovarian cyst on my left ovary which has a suspicious looking mural nodule. I had the cyst and mural nodule removed via minilaparotomy about 6/7 weeks ago now and just had my biopsy results back after multiple rounds of re testing to confirm exactly what it was. 

It has been confirmed to be a sex cord granulosar cell tumour, stage 1 low malignancy. Due to my age and the fact I am yet to have children I have been given the option of ‘watch and wait’, having ultrasounds every 3 months to monitor the affected ovary for any reoccurrence. I can also have the affect ovary removed via key hole surgery and further monitoring and a biopsy following this, which I have been told can give peace of mind and reduce the recurrence risk. I only found out yesterday so am taking some time to process and make a decision but was wondering if anyone here has had a similar experience or any particular route they would recommend.

I am reluctant to have the affected left ovary removed as my right ovary is ppolycystic in appearance and i have some fertility concerns especially due to the fact the granulosar cell tumour means I cannot receive any fertility treatment in the future. My partner and family and friends have obviously said the decision is my own and whatever I decide will be the right decision, but they are more inclined to say surgery sooner rather than later would perhaps be the best option. 

Any comments or advice much appreciated Slight smile

THank you,

Georgia

  • Hello Georgia

    Im sorry your going through this especially at such a young age x your family are right this is totally your decision, there’s no right and no wrong, you must do whatever you feel is right for you although you want to do things to make others feel better this is your body and your life x could you be referred to a specialist with regards to the decision? A fertility specialist or specialist in this field? It may be worth asking as this can help you further with any decision you make x as you say it’s early days and you really need time for all information to sink in before any options are made , you say your offered 3 monthly scans so at least your going to be kept an eye on going forward and you’ve also been offered other options , this is good as your not bound to just one single decision ( even though many options can make things difficult) x hopefully someone here is able to help you if there going through a similar situation x also remember if you get overwhelmed and need someone to talk to the MacMillan helpline is amazing, someone will listen and help you navigate your thoughts and feelings x x