Hi, I feel a bit of fraud posting here as I’m kind of in limbo at the moment.
Back in October I experienced some watery/pink discharge and slight cramping. I immediately took myself off to the doctors and was met by a rather unimpressed male doctor, who even asked me why I had come when it only happened once. I explained my periods had been some what heavier and painful of late but that I was regular as clock work and had not experienced anything like this before - I also wasn’t due on for another two weeks. . He swabbed my cervix and said if the results came back fine then to leave it and see if it happens again. Obviously they came back fine so i carried on as usual and thought maybe I was just becoming peri menopausal.
Next month came and the discharge came again, this time for a week. I took myself back to the doctors and was told to have some blood tests and was booked in for an ultrasound.. My CA125 came back at 70 but it was done during my period so I had to re take it and then it was 58. I went for my scan and they found thickening of the womb, polyps and a 8x5cm complex borderline cyst with fluid and solid parts on my right ovary.
Referred to hospital to confirm what was seen on the scan and have an endometrium biopsy and MRI.
After the MDT, the biopsy for my womb has come back clear and I have been diagnosed with endometriosis - this is what has caused the cyst. I’m now so confused which is the best decision for me in regards to treatment, I’ve been offered removal of the ovary and polyps or a complete abdominal hysterectomy. I’m 36 and I know they would like me to keep an ovary due to having a family but I have a 17yr old son and 10yr old daughter … my family is already complete. I feel due to the cyst ( which I won’t find out is cancerous until after the op) the endometriosis and the polyps that I should go for the hysterectomy. I would never forgive myself if I didn’t do everything possible to have as much time with my children as possible. I would feel awful if I find out it’s cancer and chose to only have one ovary taken. Then again, am I putting myself through major surgery when I could just opt for the ovary removal which could be benign or pre cancerous? I know how difficult menopause will be - I’ve done the research. But it can’t be as difficult as the last two monthes have been worrying about not being with my children. I don’t even know what advice I’m asking for? Has anyone been in this predicament. I’m on the cancer route, have met my macmillan nurse and being treated by cancer surgeons but haven’t been diagnosed? I have my pre op tomorrw - So my op is in the next few weeks. Im so overwhelmed and confused!
Hi OL3005 and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
Please don't feel you're a fraud as everyone is welcome here whether they've had a diagnosis or are still in the testing stage.
I'm not a member of this group but noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.
While you're waiting for replies, it would be great if you could put something about your symptoms and tests, etc into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
"Never regret a day in your life, good days give you happiness, bad days give you experience"
