Hi all,
My mum is due to have surgery this week after 5 rounds of paclitaxel/carboplatin chemo, for stage 4b ovarian cancer. She’s been told they’re not sure exactly what they’ll do in the surgery until they start but from my reading I guess it will be a radical hysterectomy? Has anyone had any experiences of this surgery which they can share and what the recovery is like? And has anyone had a similar experience where they didn’t really know what the surgery would be until it was over?
Thanks so much,
M x
Hi
I had ultra radical debulking surgery in Sept 21, they kind of new it would be removal of omentum most of the peritoneum hysterectomy then I just had to agree for them to take n do whatever needed doing, my surgery last 9 n half hours ,unfortunately I had to have a bowel resection so I have a stoma now, my recovery was really quick coping with the stoma was the hard bit, to accept n cope with the care of it, it was my worst nightmare tbh. If I didn't sign for look n do surgery I couldn't have it.
Hopefully your mum will be fine, I was diagnosed aggressive stage 4 and although I got through the bad stage I now have recurrence and going through treatment all over again xx
Hi Noggins thanks so much for your reply. I’m so sorry to hear all you’ve been through and that you’re having a recurrence now. If you don’t mind me asking more questions (no pressure to answer), how long were you in hospital? And how long before you were back to doing things like going out and about? And is there anything that was helpful for you to have in hospital or when you were recovering? I’m just thinking about whether there’s anything I could get for mum that might be useful.
I’m truly sorry for your recurrence and hope you’re getting good treatment. How long was it from end of treatment to recurrence?
Thanks again and all the best for getting through this recurrence.
M x
I had surgery Wednesday 22 nd sept I was in itu for 5 days then went onto a ward, apparently I recovered 50% quicker than most woman that had had similar op to.me, I was ready to.come home on 30th bit I had to stay in to.learn how to.look after the stoma, I'm incision was breast bone to public bone I was.lucky where we lived at the time was all.on one level so I didn't have stairs to contend with till I needed to go.out.
I didn't go.out much tbh as I lost.my confidence when I lost.my hair
A bit of advice for.mum to keep her posture when she starts getting out of bed post op
Head up, shoulders back, boots out and smile on
I used to.say it to all.the ladies when they started to get mobile, even heard a nurse saying it to.a lady one day lol
I didn't really do anything whilst I was in, found it hard to.focus, and I didn't really have visitors after I came out icu, we could only have one and it had to be the same person how can you choose 1 member of ur family
Can I ask how old your mum is xx
Hi
i was diagnosed stage4b last year and had surgery in June 22. Pre op they were saying I’d be in theatre 8 hrs and icu for a couple of days afterwards. My surgeon said with ovarian cancer they are never really sure about how much will need to be done until they get in. I was marked for a stoma and had to sign for spleen and anything else they needed to remove. Ended up cut from breast to pubic bone, full hysterectomy plus omentum and they burnt off disease from under my diaphragm. In theatre 5 hours and no icu. I felt so tired afterwards felt like I couldn’t keep my eyes open. Home in 5 days. I then had two more chemos which I found really tough so soon after the op. I was really scared for surgery but for me it didn’t end up as bad as it could have been. Fingers crossed for your mam x
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