Niraparib

Hello

I have just started on Niraparib last week. I was diagnosed in Feb 22 with stage 4 ovarian cancer and had 6 rounds of chemo and full hystorectomy. My last CT scan showed no disease.  Interested to know when the side effects such as anaemia started to kick in.  So far I feel ok -will have my bloods tested this Thursday.. I am taking 200 mg of Niraparib per day.

Hi I  was on 300mg   but blood pressure  starting to get higher and heart racing ,so 200mg now .insomnia and dry skin only issues now , ca125 staying under 20  so grateful  for this medication 

Hi Fiona

i decided not to take Niraparib in the end so I have no experience to share with you. 
I hope you continue to feel well. 

Morning! After deciding not to take Niraparib did you get alternatives? 

I started my Monday, BP is a little higher than normal but nothing to worry about. Feel little nauseous in morning but trying not to take sickness pills, it wears off. I also find insomnia but hey ho hopefully it will get better. Trisha101 I am also grateful for being given Niraparib, it can’t possibly make me feel as bad as having the cancer and chemo and all the added extras that come with it, I didn’t have an easy ride. 
Best wishes to you all. 

No I’m currently on no medication but am feeling well. If I took Niraparib now I wouldn’t be offered it at a later stage, potentially after a recurrence, so by not taking it now I’m keeping that option open. 

Ah I see... Can I ask.what stage you were, so are you being tested on a regular basis, ..

I had stage 3 grade 3 ovarian cancer in January and had an op to remove my ovaries, womb and various cancerous clusters around other areas of my abdomen and then had 5 rounds of chemotherapy. I have no visiblecancer left. I am being monitored every three months and if my CA125 goes up they’ll do more checks and potentially more chemo if it shows as a recurrence. Meanwhile I’m getting stronger and feeling much better than at any time this year and am hoping for no recurrence or at least delayed by many years!

Omg! I wish that for you too!!! I am stage 4b, I am in a good place as op and chemo worked but ofered Niraparib to start 7/11, to be honest I am feeling so good at the minute after a brutal year just starting to get back to being me again, even thou still look a bit different, however, my hair is coming in well, I am a little concerned about the side effects of Niraparib as I had alot of bother with bloods while having chemo but I will try it and pray my body accepts it...

Thank you for reply and loads of hugs!

I had bloods tested as I will start Niraparib on 7/11 results show my bloods low and CA125 was 588, I'm in shock it's that high. any advice will help