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Having just experienced urachal cancer (1/1000000 frequency), I wanted post so anyone else who gets this diagnosis knows they aren’t alone. I believe there are at least 5 people in the north west of England but when I first got this diagnosis there was...
My sister was diagnosed with cancer at the end of December, but even though she’s been in ICU since the start of January after the tumour in her abdomen grew so rapidly over the week after Christmas we took her into A&E only to find she may pass during...
Hi all Thank you for inviting me to join this group. Four days after my diagnosis I woke up with pain in my spleen and shoulder. |I was advised to go to a and e and I was admitted. The pain was brought under control with strong painkillers and I saw...
Hi, I'm a newbie, I was diagnosed in April this year I have myelofibrosis Jax 2 I am currently on chemotherapy tablets, I have regular blood tests. I would just like to talk to other suffers as my husband can not speak to me about my cancer he can not...
Hi just invited to this group. My dear husband has this disease which, we are told is incurable, but manageable and so far it is. I think that I would be uncomfortable sharing my feelings as would not want to upset anyone or burden them. I will be better...
Hi everyone I'm new here, My dad was diagnosed with this awful disease a year ago now which is MDS, he has had brain cancer for 27 years and weirdly the chemotherapy he had for that has actually helped and the tumour is fine but if it was to grow untreatable...
My youngest son who lives in Canada with his wife and two young children was diagnosed just before Christmas with MDS & MPN Overlap. I know it’s early days. I’ve been trying to find out more about these two rare blood cancers but it’s difficult. It...
My Dad has MDS he’s deteriorating before my eyes
Hi.After severel venesections and hemacrit struggling to stay at 45 .been given interferon 1st infjection tonight .scary times,any reassurance from others with this treatment would be good TIA
Hi everyone, I was diagnosed with the above about two months ago. I’m struggling with the tiredness and feel I’m letting people in my home life down as I just don’t seem to have the enthusiasm to help with general jobs in the house. I also have monthly...
