Polycythaemia Vera

  • 1 reply
  • 7 subscribers
  • 300 views

Hello, I’m new here and I’ve just received this diagnosis.  It was only discovered following a private health check where my haemoglobin was 241 - range should be 115-155, I’m told and my haematocrit was .75 - ideal number is .5.  Fast forward to an emergency GP admission to hospital and a 5-night stay with venesections twice a day.  I’m currently having v-sections twice weekly alongside aspirin and Elanapril for my sky-high blood pressure. When my haematocrit levels get to .45, I’ll be starting hydroxycarbamide. 

The only time I’ve been hospital was to have a baby and I’ve never had to take medication.  I’m extremely fortunate to have been seen and treated but feel a bit of a fraud, as I am well.  Just goes to show that health is a precious commodity  

I have read your story  and what an inspiration you are, living your best life and sharing your knowledge and expertise.