Hi I am new to this I am 48 years old and after having A TIA I got diagnosed with ET 8 weeks ago and got started on oral chemotherapy. First 4 weeks on drug my platletes never came down .They have doubled the dose 3 days a week and single dose the other 4 days .Is this normal at the beginning of treatment for the dose to be doubled ? I am also having terrible fatigue and tingling in hands and feet was wondering if yone else has any side affects ?
Hi L Davy
My Father was diagnosed at the end of last year with ET. He also is on oral chemotherapy. He started off on one tablet a day. His platelets did come down to begin with, but then stopped, so they doubled his dose which is what he is on now. His platelets are now in the normal range, so He is remaining on this dose for now. I think it is trial and error at the beginning to see what dose is best for you. He has had fatigue, and had a very upset tummy at the beginning, but all this has settled down. He hasn't mentioned tingling in his hands or feet, but has mentioned itching on his calves. I would mention this to your oncologist just to make sure it is a side effect of the medication.
All the best
